For all the weeds of life (i.e. identity theft), I want to acknowledge the varied blossoms of happy moments I have experienced lately and gather them into the tidiest bouquet possible for this post, from the most literal (being able to wear a perfume with strong floral notes without sneezing, wheezing, a runny nose, or systemic malaise) to something more symbolic, like seeing Tony attend the first birthday party he’s been invited to in years. For nearly an hour before we left I watched him display comfort I once only dreamed of seeing him have in a completely new to him house and mostly unknown to him guests. He did some answering questions with his speech device, he smiled, and he left calm. Such a beautiful bloom, that.
To Emily, thank you for inviting him and I. You know how rarely anybody extends that type of invitation to him, and as a mom, you know how grateful I am in this moment. Your friendship has long been a gift and a blessing in my life. We appreciate all of the years you have worked with our son as one of his therapists and as you move forward on this next chapter, I am honored as always to have you in my life.
I think it is pretty clear from the previous week’s post, but so many of my happy moments this past month have bloomed because of my new tolerance for CBD and how it is currently improving the control of my Mast Cell Activation Syndrome related symptoms. For me personally, the CBD combined with the reduced meds is actually a lower level of potential medication complication, so it’s an incredibly desirable outcome all the way around at present, and my every hope and wish is for the continued success of this. The tender and many-colored petals of feelings are everywhere in my life right now, but this morning’s fresh burst of happiness came from finally waking up to eyes dramatically less irritated after finding the right mix of dry eye products. I appreciate the recommendations of my allergist in helping me out with some of that.
To our son’s special education leadership team: thank you for approving him for extended school year. He has worked so hard to expand his tolerance of all of the sensory input in this environment, it is the baby’s breath of bubbling puffs of joy to see so many moments of growth for him there. But, as we have only just reached beyond 2pm in the afternoon, helping him have more experiences in a school environment over the summer will help new buds of skills to thrive and blossom. I am deeply grateful to your team for recognizing that and supporting his needs so fully.
There is so much more in my heart, but I am also facing a tighter schedule, and to be honest, I have moments of burn out where it’s hard to be working two jobs that can go 7 days a week on top of everything else. I have extra therapy work to do to help Tony acclimate to the summer school campus (which is different from his regular school), specialized testing we are doing at my allergist, and many other things that will fill up much of my time. I’d really like to cuddle and watch a movie with my honey right now, so…I’m just going to tie this up where we’re at with a hint of maybe I’ll be doing fewer posts for the next month, maybe not. Totally depends on how the schedule works up and what my physical and mental health needs are clamoring for.