Ariana's Posts

346 posts

The Autism Awareness Puzzle Piece Symbol Controversy: My Thoughts

We’re going to be taking a detour from what I originally mentioned discussing this week…but, I’ll be getting back to that, probably next week. Because I am still in burnout mode. Not just from the emotions of everything going on globally, within our local community, and within my own personal life- but because self-care is

March Gratitude & Some Reading/Viewing

Gena I know how important a certain level of on-line privacy is to you, so my respect for you and for that is the reason I am keeping the details here scant. You and I both know what was done, and while I might not share those particulars publicly, I certainly believe they are worthy

“No Pressure”

Andy and I watched Encanto for the first time this past Sunday, broken into sessions wrapped around the chunk of hours I needed to work with a new habilitation provider. As I listened to Luisa sing “Surface Pressure,” I felt how aptly and concisely it seemed to capture the way I feel so much of

Valentine’s In Pieces

With most every other post I have ever done about how things feel from my side, I add some sort of statement within that post acknowledging that I completely understand and do not judge people for feeling that the challenges our son has are outside their comfort levels when it comes to personally helping out

Revisiting Moments of “Grief and Rage”

Nearly 3 years ago, I shared with those of you reading our blog at that time some words of the hilarious guitar goddess Mrs. Smith to describe some of my feelings about some of the things people say to us about the circumstances we are in. At that time, I shied away from saying that

February Gratitude & Some Reading

To Eowyn The razor thin edges on so many words, the shattered shards of a strong divide, coated thickly with the dust of nearly a decade replaying only echoes of it all… a formidable array of obstacles that would have dissuaded many from trying to bridge such a potentially jagged and emotionally fraught gap. Thank

A Quick Spotlight For Hannah’s Drawings

I am a woman richly blessed with two beautiful children, though much of my writing here focuses on the needs and circumstances that have arisen from only one of them. Hannah’s participation here has always been at her discretion- she can contribute what she would like or not, as she feels inclined. Regardless of what

Key Moments From Our Latest COVID Quarantine

Andy actually wasn’t the first person in our family to develop symptoms, nor was he the source of our exposure- though he was the only one to be PCR tested because of his job. Two days after I got my new piercings, our sweet Hannah had brief unmasked contact with her boyfriend…who developed symptoms the

“What The Heart Wants…”

To be the mother of a child with profound disabilities is in many cases to wobble precariously along a thin ledge comprised of a great many sacrifices while trying not to completely loose yourself, yet feeling as if some days are still spent in free fall, searching for the person you could have been or

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