Ariana's Posts
343 posts
Emily I know that there are plenty of people I still owe a gratitude note, and some of you may remember that Emily has already received one a little over two years ago. But that was way back when she was Tony’s music therapist, with a very different role and significantly less time and involvement
I am rarely at a loss for words to write or say. Our current local surge of COVID infections has left me wading through a dim bog of uncertainty. Far too many in our communities have lost loved ones, others are still battling for their health, and many people have lost their jobs…so I feel
I am going to start off by posting some screen shots that I am going to ask each of you to bear patiently with me and read. They provide some context for my remarks this week. For me, this is something I believe should transcend politics. I am sure it is already evident to anybody
I had the pleasure of catching up a bit with Gena on the phone yesterday while Emily did some therapy work with Tony. I enjoy our conversations so much I barely registered that we had been talking for nearly 45 minutes before I had to end the call to participate in an OT telehealth session.
Casandra Casandra, when you first came to meet our family more than a year ago, I was scared to hope that this was a job you would be interested in taking. I laced up emotional armor to shield my heart from disappointment, and instead found blessings and more reasons than I could ever list to
So many of our communities are boiling and burning right now. For days, I have struggled to know what to say about this, but felt that I would indeed want to share some form of comment with my loved ones. While I have certainly not known what it was like to be targeted by police
This is one of those weeks where I was initially planning on writing about an entirely different subject. I am going to move that previously planned post to a different week because I feel current events require a change in plans. Today, Tony’s original speech device died (this is the device he’s been using since
I was talking to our son’s geneticist today (who is sadly, accepting a new job elsewhere this summer- sob!!!), and we were discussing how hard changes can be for Tony. She commented that the kinds of changes we have all been experiencing in our communities can be hard for anybody. When a kiddo has as
My, how the world has changed. So, let’s just start with me admitting I am not one of those individuals that enjoys cleaning. Nope. Not even a little bit. Next, let’s just add that because of my own allergy and asthma related symptoms (combined with Tony’s desire to lick many surfaces best left unmouthed), I
This is one of those weeks where many unexpected things have dropped roots and sprouted up all across my schedule, and the rest of my unspoken for time has been dedicated to infection control aimed at providing the safest environment possible for those who work and live in our home. So this week, I am
