Ariana's Posts

341 posts

Better Homes and Gardens We Are Not

In our church, like every other group in existence, there are some aspirational stereotypes  for achieving personal excellence. If you are unfamiliar with our cultural orthodoxy for women, allow me to introduce you to our modern near-mythical maven. Please do not criticize her for trying to be all of these things, she’s under enough pressure

Keeping Up With the Beat of NMT

  Change is like an erratic pulse…sometimes the beats are slow and the space between can stretch out, only to sprint wildly towards a rapidly winded staccato. This has been a month where we’re experiencing more changes and emotionally I’ve been a bit more breathless, as two of Tony’s providers (Madi and Rosette) have accepted

July Gratitude & Reading

To The Fab Duo, Jennifer and Stephanie Jennifer and Stephanie are the Clinical Supervisors for the ABA and habilitation portion of Tony’s therapy programs, and are responsible for recommending and designing therapy tasks to teach a wide variety of things, plus providing feedback on ways Whitney and I can improve therapeutic techniques and interactions with

Family Statement on Services Eligibility Redetermination

This past Friday our family received confirmation in writing via e-mail that Tony’s redetermination of eligibility for services under the Division of Developmental Disabilities in our state has finally been approved. While we are pleased this matter has been resolved, this has been a process I personally have found to be far too difficult and

Public Therapy Here, There, & Everywhere

As I have mentioned previously, when it comes to successfully working with Tony, his bond with a person matters. Evidence of this can be seen in many areas, and currently he is at his most cooperative only with the people he has more trust in. This is something that always has to be respected when

Rocking A World Of Constant Motion

When people meet Tony in an environment he’s less threatened by, I am often asked: “Is he always this active?” I can only go with the truth here, and that would be…Yes. Now go ahead and close your eyes, imagining that word as a flashing neon sign. While Tony certainly struggles to do certain movements,

A Hero & A Villain

Catzilla. His Royal Fluffiness. Dickens the Destroyer. Best Friend. Cat Moose. Hero. Villain. Like many of us, Dickens was complex. To the members of our family he was different things at different times (as we all are to the people around us), but at the end of the day he was loved from the first

June Gratitude & Some Reading

To Dr. Shane Hunt & Angelique…For Helping Some Sun to Shine As mentioned in last week’s post, the assessment recently requested by our local Division of Developmental Disabilities was completed by Dr. Shane Hunt, with assistance from one of his interns, Angelique. When I asked Dr. Hunt if he would be comfortable with me dedicating

The Stress Will Mess You Up

The afternoon of April 20th started out calmly. Andy and Hannah had left the home earlier in the day for an overnight church daddy-daughter camping activity, packing the commotion of preparations and excitement neatly away in the car with them. I had been telling Tony that they would be sleeping out with the trees and

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