Ariana's Posts

Gratitude & Some Doing

Appeal Decision Received April 2, 2020, Photo by Ariana

To B.L., Mr. T.J., and Ms. S.J.

Heaven knows this has been a long and stressful week, and all my artsy prose has failed me. I am left with whispy words of gratitude, but I give them to each of you none-the-less. THANK YOU, a thousand times over, each and every one of you for the support you have given in helping us through the long application, denial, and appeal process for a fully functioning AAC device for our little man. We are profoundly grateful to each of you for your professionalism, your time, and your support. And to T.J., an additional note of thanks for sending a picture a couple of days in advance to your evaluation so that we could talk to Tony about your visit and help him understand who to expect. Such a simple thing helps him to feel less scared, and I thank you for taking the time to care enough to help put our little boy a bit more at ease. Thank you, each of you, for helping us win access to approval for this medically necessary equipment for our son.

To A.S.

Doorstep Angel, thank you for spreading some cheer. When other people we knew much better at one point let Christmas with us pass unacknowledged, you warmed our hearts and our doorsteps with tasty treats. And our family was deeply touched by the thoughtfulness of the recent bundle of toilet paper, hand sanitizer, and cookies that you left. Thank you for taking time to write me every now and then to see if we are ok. You are a sweet and thoughtful person, and we deeply appreciate your kindness to our family.

Some Doing to Consider

The mask I made for Emily, which uses fusible interface, an additional layer of non-woven material on the inside, and has a pocket for a HEPA filter cut out to be inserted on the back side. Emily will be allowed to return to work in our home for limited hours starting on Monday. Photo by Ariana

Family, friends, loved ones, and anybody taking the time to read this: life can be fragile and these are scary times for a lot of people. I want each of you who are able to go be a doorstep angel for somebody else. Perhaps someone you know needs help shopping. Maybe some of my fabulous sisters-in-law, who truthfully put my crummy sewing to shame, could consider sewing masks for those unable to do so themselves. You could reach out and call or send a kind note to someone you know working in healthcare. Especially if they are on the front lines providing hospital care to those who are ill with COVID, they could probably use all of the love and support you can give right now. And with that, I am going to sign off for this week. I have been sewing masks for our family and therapy team members, sanitizing, and generally kept crazy busy…and I must get back to it by putting away some laundry.

Take care of yourselves, and keep safe.

2 thoughts on “Gratitude & Some Doing

  1. Thank you, I am very, very happy our appeal was approved. Our appeal basically consisted of me listing direct quotes and page numbers for where DDD could find necessary information on the reports, evaluations, and applications they already had on file. As I understand it, this could remain an ongoing issue for other families still at this time though.

    Emily tentatively is returning next week…for about a third of her usual hours at this time. And, you are very sweet…my secret is that I gave Emily the best one so far 😉 Although, Hannah’s and Andy’s latest ones are decent also. What you really need to see are the pictures for the first two I made myself…now those could *really* be picked apart!

  2. Such good news this week! Congratulations on getting your appeal approved, and on Emily returning to work with Tony.
    I think your sewing skills look great : )

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