A couple of weekends ago, on our last public therapy trip with Emily as Tony’s hab therapist, he laughed, smiled, and flapped as we walked towards the door of our local Fry’s. When we first started our public therapy programs, I never would have expected to see him looking happy in that context. The best I had been hoping for was to achieve sufficient tolerance for us to accomplish what was needed.
We had to put our son’s public therapy programs on pause for the first several months of the pandemic while we worked on building up his tolerance for wearing masks. Our little man has a history of pretty intense tactile defensiveness which we have been working to improve via therapy since before he turned 2. For the mask, we had to start with putting it on and letting him take it off in home, and then we increased by two second intervals until he could tolerate that for two days in a row with at least 80% of the attempts at wearing, and once we were over a minute I increased the number of seconds for each increase, and we just worked up from there. After about 10 months, we were able to achieve enough mask tolerance to resume short trips into public places.
Once we were back in the stores, we found that the break had allowed him to become less rigid about directional flexibility, but we have had to deliberately make sure we vary doors entered and routes walked for every location so that he doesn’t revert to directional rigidity in these environments. All work in any medical setting is limited to his own visits because of the pandemic, though we are hoping sometime in the next couple of months to be allowed to take him into the hallways of the local elementary school to practice safety skills there.
Tony at his PCPTony at his dentist, this lobby was full when we first got there, and this is 40 minutes or so into our wait…
And we’re having some impulse control wins also: he’s getting better at walking by ladders in stores without trying to climb them. RBT M & Tony.
We still have many things we need to achieve when it comes to our son’s ability to function in public spaces (like not trying to grab other people’s drinks from them or avoiding micromanaging how they’ve set up their carts). But as his tolerance has grown, we’ve been able to start to fade the use of the metronome (an NMT technique to promote emotional regulation and help maintain a steady walking gate when his sensory system is overloaded). I haven’t seen fear based eloping unless we’re in a medical setting this past year, though he will sometimes run or walk off to try and start a game of chase. We’ve been able to advance his communication skills from not just talking about what he wants in the store to having him label items he sees. And more importantly, we’ve been able to increase the number of people he’s working with in these settings so that he can generalize his cooperation.
What follows is going to be as series of pictures of some of the things we’ve been working on the past few months. We do public therapy programs in both hab and ABA therapies. Most of our trips are just Tony, a therapist, and myself. One trip every month or two involves the oversight of the ABA clinical supervision team.
We are only asking Tony to keep the mask on when he’s in the public space…BCBA1, Casandra, & Tony.Therapists on their phones during therapy? Not really, BCBA1 is shown here entering data from our outing to a local Walmart on the way out of the store.We encourage Tony to carry his device to make it easier for him to communicate independently.Sometimes he gets scared by the number of people going into or out of the entrance, and will wait until there are fewer people before he can be persuaded to enter.He likes to try and take control of where we go by grabbing the side of the cart, I will step up and walk him back to the therapist’s side. Nicole and Tony shown.Tony likes to put his kindle and speech device in the empty cart if he can, and usually picks it up to ask to use the bathroom first thing in the door.Walking to the bathroom, Nicole & TonyWaiting when asked to after walking ahead of Emily & I on the way to the bathroom. Getting him to stop isn’t as successful in stores yet as outside in the community, possibly for sensory reasons.Waiting for the bathroom, we are working on waiting without trying to continually open the door, etc.More waiting for the bathroom, practicing keeping hands to self…Emily & Tony shownWe then work on directional flexibility, BCBA1, Casandra, Tony.The therapist will tell give him directional instructions, RBT M & TonyNicole & TonyRBT M & Tony. We try to keep it random as possible to strengthen flexibility. Generalization is huge for him, because what he will do for one person isn’t necessarily what he will do for any person until he’s practiced doing it with several different people.BCBA1, Tony, & Casandra, Casandra giving directional instructionsIf we have a clinical supervisor with us, she will also take turns giving directional instructions so Tony gets more practice following others, BCBA1 shown here doing that, Tony following flapping.Sometimes he’s paying more attention to his kindle than where he’s walking, but because of the mask, we need to use that as his reinforcer for the ABA programsHe’s doing less running off, and more walking off when it comes to eloping…seen here not stopping when requested. He’ll look back to see if you’re going to follow him or not, but if you don’t, he won’t come back, so if he fails to respond to two requests to come back, I will go after him since the therapists aren’t allowed to block if needed.He likes to sit when we pass chairs, but part of the program requirements are for him to ask independently for permission to sit first, he will do so most of the time now.Casandra, BCBA1, & Tony’s feet shown. I will let him sit for a few minutes, and then direct him to stand up & follow the directions of whoever is in the lead.We are working on functional skills….such as grabbing an item and putting it in the cart.Nicole & Tonygrabbing…carrying, but sometimes he gets distracted by his kindleWe are working on gently putting items inWe are working on having him ask for something when he wants to buy it, shown navigating through the food categories…Here, he wants us to get some apples….We’re working on him paying attention to and describing items pointed to by the therapist in publicTony & Casandra in Lowe’s, he’s touching the item Casandra wants him to label…The next step is finding it on his toucchat…Sometimes the therapist has to prompt and point to the item because this isn’t his favorite thing to cooperate with…Shown here trying to avoid the task by squeezing himself under a microwave display, supposed to be labeling the dishwasher…When we are doing this, sometimes we go to a store that has lots of different types of a particular item to help with generalization of the skill. Casandra & TonyNow that we’re needing to spend less time working on eloping, we’re getting to focus more on increasing his cooperation with the request to not touch things. RBT M & Tony shown.Sometimes he tries to climb on the shelves when they are empty, here he did so because he was scared of a baby that was crying and was trying to curl into the shelf wall to comfort himself.Tony is practicing waiting and coming when requested in a store.RBT M shown asking Tony to walk to her, he was waiting with me.We’re asking him to locate specific items in a visually busy area and then put them in the cart.RBT M & TonySometimes he waits with what others would consider very appropriate behavior when we ask him to wait….other times, he’s doing stuff like spinning (mid spin here). We’re just going to keep practicing until we get to where we need to be….And a huge thanks to everyone who has been working with our son to help him continue gaining skills in public spaces during these more challenging pandemic times!