Bits of Gratitude When Bob passed away this past summer, I scrapped some planned posts to take a couple of weeks off, and one of those writings was going to be focused on finding gratitude for the little things even when hard things are happening. I am going to condense some of those moments here
This summer has been serving up extra helpings of heat that just seem to keep coming. My patience has long past its fill of this weather, but these extra toasty temps just keep stretching up and on far higher than I want every time I look at the forecast. I have for many months felt
We are working on so many therapy targets right now I honestly struggled a bit to decide which one to lead in with this week. I decided that what made the most inherent sense to discuss is the work we are doing towards helping Tony gain increased tolerance for wearing a mask, as our ability
For several years now I have been hearing so many stories about habilitation therapy in Arizona. “Rumor has it,” some families of older kiddos who lost their habilitation (hab) therapists and couldn’t find a replacement quickly had their authorized hab hours taken away from them. Which then makes it much harder to find a replacement,
To Miss J, Who has been Tony’s fabulous DDD Support Services Coordinator since the summer of 2018. Our very first meeting, you listened to what I told you our son needed and did your best to make it happen. I know the approval of specific services is not in your hands, but I am extremely
Many years ago, I had a friend with advanced degrees and the kindest heart. This person needed significant support with activities of daily living. I know the level of support required because I was trusted enough as a friend to be asked to help provide those services more than two decades ago so that the
When Tony and I have gone out into public spaces, eyes are almost always upon us. The eyes of those who saw our screaming son rip an earring out of my ear when I was putting him on my shoulders outside of a local Safeway a few years ago, and mutely watched as I squatted,
Sometimes talking to anyone can be a tricky thing. I feel like an apology just as readily needs to grace my lips as anything else I could possibly say, because often when I have personally given offense, it was most certainly not intentional. What one person in a group finds offensive another does not, and
Bob The person to whom this note is dedicated can no longer read it with mortal eyes, but he was given these words in person from me privately some time ago. I share them with you now as a brief commemoration for how a moment of thoughtfulness from him touched my life personally. I have
This past week, there was a non-COVID related death in our extended family. I will be taking the next two weeks off from posting and writing to provide extra support to my children as they process this loss, and to avoid vying for the time/attention of those in our family who will also be providing
