As you are looking at this picture, I don’t want you to ask yourself should our son have been up there on collapsed bleachers. I don’t want you to think about whether or not he can get down safely on his own. Those are, of course, valid questions, but there’s really only one thing I
My sweet sister-in-law, Randi, sometimes babysits our son when I have medical appointments. For a recent appointment I had with my allergist, I got him dressed and asked him to keep his clothes on for the entire time his Aunt was here. Tony has a history of pretty intense tactile defensiveness as his skin nerves
There are times when I have encountered the sentiment in others that I don’t have much of a right to express any sort of discomforts over the personal challenges I have faced or the sacrifices I have made to provide the intensive level of support required for our son. He is the one with the
I thought of all the ways I could write this post, and I decided just to wrap it around a screenshot from an e-mail I sent some friends on December 28, 2016. I am going to re-type it just following this in case the images don’t show up well for those who get my posts
My friends, family, and loved ones: I have so many things I need to do still tonight and for the remainder of the week. My eloquence is toast, my desire to create artistically pleasing phrases to describe our circumstances is worn to silence by hand-wringing over the to-do list. So briefly: I am grateful for
Sometimes on this blog I have used my October posts to delve into some of the darker aspects of what a family of a loved one with significant disability-related challenges can experience. And, I thought about it this year too. I was thinking something about playing on the words of an older LeAnn Rimes song,
Even though I am working with Tony on his tolerance of the school environment and the behavioral skills requisite directly during the two hours he’s currently at the school itself, I am also needing to do other things outside of school to promote the best outcomes. As his habilitative therapist, we are practicing skills such
Some day, my son is definitely going to be able to read. He can do a little bit of spelling now using apps, some sight word memory games (where the sight words are turned over and he creates matches from memory). Lately I have been practicing his scanning with him by giving him fields of
A Heartfelt Moment Of Gratitude These are just very heavy times. By the very nature of some of the things a family such as ours can experience, this is not generally a light-hearted blog, the kind that a person would turn to for distractions when the headlines are detailing the stark horrors of wars and
There is so much rushing, so much. My thoughts have always whirled in a rapid-fire dance across my mental stage, but life has become busier even than that. So many appointments, so many therapy sessions, so much school transition work, so much of everything. Sometimes I feel like I am hurled forward so fast I
