Tag: Autism
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Celebrate Every Little Thing Like It’s Big
The stress in my life lately has been palpable and ravenous, requiring the delivery of an increasing diet of effort, guzzling sleep while leaving behind far too many regurgitated memories of middle of the night hours. Last night was the first night in several days I slept more than 6 hours. Tony was awake a…
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Celebrating 2 Years of Telehealth Speech Therapy Being More Successful Than The In Person Sessions 🙂
Tony has always, always hated speech therapy. For many years this was his least favorite therapy type, as every speech therapist who has ever worked with him can attest. Our little man understands a great deal more than most people realize (in both English and Spanish), but he still usually doesn’t want to communicate unless…
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The Autism Awareness Puzzle Piece Symbol Controversy: My Thoughts
We’re going to be taking a detour from what I originally mentioned discussing this week…but, I’ll be getting back to that, probably next week. Because I am still in burnout mode. Not just from the emotions of everything going on globally, within our local community, and within my own personal life- but because self-care is…
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“No Pressure”
Andy and I watched Encanto for the first time this past Sunday, broken into sessions wrapped around the chunk of hours I needed to work with a new habilitation provider. As I listened to Luisa sing “Surface Pressure,” I felt how aptly and concisely it seemed to capture the way I feel so much of…
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Valentine’s In Pieces
With most every other post I have ever done about how things feel from my side, I add some sort of statement within that post acknowledging that I completely understand and do not judge people for feeling that the challenges our son has are outside their comfort levels when it comes to personally helping out…
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Revisiting Moments of “Grief and Rage”
Nearly 3 years ago, I shared with those of you reading our blog at that time some words of the hilarious guitar goddess Mrs. Smith to describe some of my feelings about some of the things people say to us about the circumstances we are in. At that time, I shied away from saying that…
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February Gratitude & Some Reading
To Eowyn The razor thin edges on so many words, the shattered shards of a strong divide, coated thickly with the dust of nearly a decade replaying only echoes of it all… a formidable array of obstacles that would have dissuaded many from trying to bridge such a potentially jagged and emotionally fraught gap. Thank…
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Key Moments From Our Latest COVID Quarantine
Andy actually wasn’t the first person in our family to develop symptoms, nor was he the source of our exposure- though he was the only one to be PCR tested because of his job. Two days after I got my new piercings, our sweet Hannah had brief unmasked contact with her boyfriend…who developed symptoms the…
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“What The Heart Wants…”
To be the mother of a child with profound disabilities is in many cases to wobble precariously along a thin ledge comprised of a great many sacrifices while trying not to completely loose yourself, yet feeling as if some days are still spent in free fall, searching for the person you could have been or…
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Our Pandemic Public Therapy Progress Report
A couple of weekends ago, on our last public therapy trip with Emily as Tony’s hab therapist, he laughed, smiled, and flapped as we walked towards the door of our local Fry’s. When we first started our public therapy programs, I never would have expected to see him looking happy in that context. The best…