Tag: behaviors
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“The Heart Melteth”
About 10 a.m. Monday morning I got a phone call from the office of Tony’s new developmental pediatrician. They had a cancellation for Tuesday, and were wondering if I’d like to take that appointment. Yes, yes, and heck yes! And then it hit me…I hadn’t filled out any of the gargantuan paperwork packet yet for…
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Good Enough
I have had more than one person ask me how I was doing in the wake of last week’s TouchChat deletion and “restore to backup” failure. Certainly, that was a stress burger with a side of “pain in the backside” fries, however it was not the only agenda busting problem that was occurring. Truth be…
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The Doctor
Hey, peeps! Its Hannah. Again. Now, I would like you to imagine that you and your sibling are at the doctor’s office. Suddenly…. Your sibling starts crying and trying to run away from the doctor’s office. You are watching peoples’ uncomfortable stares. This is me. Tony HATES going to the doctor. What can I say?…
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Better Homes and Gardens We Are Not
In our church, like every other group in existence, there are some aspirational stereotypes for achieving personal excellence. If you are unfamiliar with our cultural orthodoxy for women, allow me to introduce you to our modern near-mythical maven. Please do not criticize her for trying to be all of these things, she’s under enough pressure…
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Keeping Up With the Beat of NMT
Change is like an erratic pulse…sometimes the beats are slow and the space between can stretch out, only to sprint wildly towards a rapidly winded staccato. This has been a month where we’re experiencing more changes and emotionally I’ve been a bit more breathless, as two of Tony’s providers (Madi and Rosette) have accepted…
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Public Therapy Here, There, & Everywhere
As I have mentioned previously, when it comes to successfully working with Tony, his bond with a person matters. Evidence of this can be seen in many areas, and currently he is at his most cooperative only with the people he has more trust in. This is something that always has to be respected when…
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June Gratitude & Some Reading
To Dr. Shane Hunt & Angelique…For Helping Some Sun to Shine As mentioned in last week’s post, the assessment recently requested by our local Division of Developmental Disabilities was completed by Dr. Shane Hunt, with assistance from one of his interns, Angelique. When I asked Dr. Hunt if he would be comfortable with me dedicating…
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The Stress Will Mess You Up
The afternoon of April 20th started out calmly. Andy and Hannah had left the home earlier in the day for an overnight church daddy-daughter camping activity, packing the commotion of preparations and excitement neatly away in the car with them. I had been telling Tony that they would be sleeping out with the trees and…
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You Say “Hello,” He Says “I’ve Gotta Go!”
By November of 2016 we had reached the point where Tony was no longer vomiting if people got too close to him, but it was still extremely challenging to get him into most public places. There are a number of reasons for that, many related to the differences in his sensory systems, but our little…
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Being With Tony in Public
Hello! For those of you who might not know my name, my name is Hannah. I am the 11 year old daughter of the creator of this blog. My school district (and others too) are taking the Az Merit right now. While I was taking the test, I thought about Tony and how we would…