Tag: challenges for caregivers
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“What The Heart Wants…”
To be the mother of a child with profound disabilities is in many cases to wobble precariously along a thin ledge comprised of a great many sacrifices while trying not to completely loose yourself, yet feeling as if some days are still spent in free fall, searching for the person you could have been or…
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Navigating The Stress Of Allergies, POTS, And All Things Health & Being Needed On The Therapy Team
For nearly a year now, I have been bobbing up and down on the waves of life, trying not to get swamped or washed overboard as I navigated managing my health and maintaining the active role I must play in all of Tony’s therapy programs that transpire outside of our house. These programs are essential…
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“Bring Me [Back] To Life”
The past several years have felt like life coming at me as I stood, like Amy Lee in the video for Bring Me To Life, on one circumstantial ledge after another, trying to climb up from an effort to solve one problem to a solution for the next. And every time I get to that…
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When Stress & Self-Care Rain Down
I have lived somewhere in this metropolis for 29 of the past 31 years, split into two periods of time. I don’t ever recall a time where the rain poured with such steady thickness for so many hours as it did last Sunday, but I had chosen to ignore to the flash flood warning messages…
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“Be Careful…”
A couple of months ago I was talking to Amara, who is the fabulous OT therapist that works with our son about how it isn’t always easy to get in to a doctor when I need a check-up, treatment or care. She told me that when it comes to my health, “you need to be…