Tag - challenges for families of disabled individuals 73 posts

ICE’d Out of Public Therapy

Screenshots from an Instagram Story of an event at ICE protests occurring today in Mesa, Arizona, January 30, 2026 that hasn’t been reported on as of the time I am writing this by other mainstream local Arizona media. The first thing I want to clarify before I do anything else is that I am home

A Field Trip First & Other Pre-Christmas Moments Roundup

When Tony started his transition into the public school environment during what age-wise was his sixth grade year, I wasn’t sure the degree to which he would acclimate to certain things. I was confident we could help him develop tolerance for a typical school day, but assemblies or field trips? I wasn’t sure he’d ever

Scooting Through More Than A Month’s Worth Of Topics…

My fasting blood sugar on August 9th, 2025. All we see here in these posts is just a part of my life, just like that is just a part of my face from November 8th. All photos/screenshots by Ariana. I noticed that I stopped having blood sugar crashes a few weeks after I got COVID

Parents As Paid Providers Actually Getting The Job Done, Another Open Letter To Governor Hobbs and the Arizona State Legislature

Me, 26 days after my cervical corpectomy this January, and me this morning. The scar has healed so nicely, you can barely tell I had this surgery by looking at me. Reading my writing though? Lol, that is an entirely different story… I spent months not writing here and we’re already back for my second

Saved ALTCS Roughly $67,000 And Counting In Diapers? An Open Letter To Governor Hobbs and the Arizona State Legislature

This evening as I was eating my dinner, I received a text from my sister asking if I’d seen the e-mail yet from DDD. I quickly scanned it, and saw that Governor Hobbs is calling for AHCCCS to go through emergency rule making to reevaluate the new assessment tool and provide a process for those

Two And Beyond

You may be thinking that title doesn’t make much sense. Some things in life just don’t make sense, not to me, not to you. Or maybe something that seems sensible to you won’t seem that way to me or vice versa. Our republican state legislators this week proposed future DDD funding measures in HB 2945

Arizona Legislators: Are You Pro-Life?

Many legislators in our state proudly tout their pro-life support. This week, as letters were being read about the lives of disabled community members during a legislative session, some of our legislators walked out without listening, ultimately blocking a bill from being passed that would have resolved budget shortfalls to disability services in this state.

“Put Out?” No.

Just a change in app functionality can show a different picture. What my son’s letter tracing looks like for words without the app correcting the lines for him as he seeks to improve his motor planning and fine motor skills. Photos by Ariana Our son has now been without PT or OT services for two

Mismanagement Probably Not: A Second Open Letter Regarding Arizona DDD/ALTCS Funding Shortages

To our Arizona State Legislature and Governor Hobbs: I have read that some in our legislature have blamed the governor for mismanagement of DDD funds. And to Representative David Livingston and all of the other esteemed members of our state’s appropriations committee, I would like to propose considering that another explanation is quite possible to

What Some Kiddos Need To Stay Afloat Through School Changes

I wonder how many parents take for granted that they can just drop their kids off at school or send them out the door to a bus stop and know that their kiddo is going to swim along through the year just fine without anything outside the expected start of the school year traditions being

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