Tag: challenges for families of disabled individuals
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Two And Beyond
You may be thinking that title doesn’t make much sense. Some things in life just don’t make sense, not to me, not to you. Or maybe something that seems sensible to you won’t seem that way to me or vice versa. Our republican state legislators this week proposed future DDD funding measures in HB 2945…
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Arizona Legislators: Are You Pro-Life?
Many legislators in our state proudly tout their pro-life support. This week, as letters were being read about the lives of disabled community members during a legislative session, some of our legislators walked out without listening, ultimately blocking a bill from being passed that would have resolved budget shortfalls to disability services in this state.…
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“Put Out?” No.
Just a change in app functionality can show a different picture. What my son’s letter tracing looks like for words without the app correcting the lines for him as he seeks to improve his motor planning and fine motor skills. Photos by Ariana Our son has now been without PT or OT services for two…
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Mismanagement Probably Not: A Second Open Letter Regarding Arizona DDD/ALTCS Funding Shortages
To our Arizona State Legislature and Governor Hobbs: I have read that some in our legislature have blamed the governor for mismanagement of DDD funds. And to Representative David Livingston and all of the other esteemed members of our state’s appropriations committee, I would like to propose considering that another explanation is quite possible to…
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What Some Kiddos Need To Stay Afloat Through School Changes
I wonder how many parents take for granted that they can just drop their kids off at school or send them out the door to a bus stop and know that their kiddo is going to swim along through the year just fine without anything outside the expected start of the school year traditions being…
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Thoughts About When Symptoms Are From A Medical Condition & Not Disordered Anxiety: A Note of Gratitude to Emma from Therapy In A Nutshell
I started watching Therapy In A Nutshell’s Anxiety series for the same reason I decided now was an awesome time to retry CBD and see if I had lost my sensitivity: Bank of America’s Fraud response. I was starting to have panic attacks in the middle of the night, struggling to sleep, and it was…
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“Two Things Are True”
Earlier this afternoon, after completing a therapy session with Tony, I dropped Hannah and her boyfriend off at Guitar Center, and then drove myself across the street to treasure a rare moment. A moment where I got to enter a store with me in mind and all by myself, no pressure to focus on therapy…
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The Schedule’s Packed, But It Creates More Than Stress
Most days are packed. Up at 4:45, giving the kids their meds, getting ready to walk around 5:30 with Tony, neti pot, yoga, rower, shower, makeup, drive into school, participate in everything that might be required there, drive home, be present for anything his ABA RBT or BCBA needs, do some chores when they don’t…
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Maybe This Ain’t Your Mama’s Stress
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I…
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Scheduling Like Tony Schedules And Then Some…
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is…