Tag: challenges for families of disabled individuals
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A Response To Raising Special Kids’ Position on Waiver Proposal 1115: An Open Letter to RSK And The Arizona AHCCCS Administration
Yesterday afternoon, I read the public response from Raising Special Kids about AHCCCS 1115, the proposed CMS waiver that seeks to extend some provisions allowing parents to provide attendant care to their children, while discontinuing others, namely allowing parents to become the paid habilitative therapy providers. I feel it is important for me to share…
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Cuando El Estrés Me Molesta Mucho…
I spoke very minimal Spanish when our little man was first placed with and adopted into our family. What motivated me initially to continue to learn was our son, because I had wanted him to be able to have a conversation with his birth mom should he ever choose to want to meet and talk…
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Where Stress & Caregiving Collide
I had a series of revelations recently about what some of my more significant stressors are and how they are impacting my health. The contrast was made by comparing some blood pressure readings, interestingly enough. A couple of months ago I needed to take Tony in to a follow up I had with my allergist…
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A Bit About Matters Old & New
I have always been so very grateful to the therapists and individuals who have chosen to work with our son and our family. So many years ago when Andy and I were driving our rental car towards Disneyland on our honeymoon, as we talked about the family we hoped to start our current circumstances really…
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What Can You See?
I’m going to start this off by asking that my loved ones who recognize the situation below make no comment. I will not be giving any identifying information because my aim is to educate and nothing more, and I will definitely strike down any public comment that doesn’t honor the spirit of that. Once upon…
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Why Random Bits of Makeup…
Trust me, I know. When I talk about makeup, it’s off topic. Most people who visit my blog don’t come here to read about my makeup, what I do, how I do it, or why I do it. But sometimes we still talk about it anyways. Because sometimes, the more constructive words that I would…
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When You Can’t Dupe Self-Care
Lately I have really enjoyed questing through my eye shadow collection to see if I can dupe looks I could produce by a newly launched palette containing a color story I like. Today I slowly moved my way through stash-shopping and creating my own variant of what is the most likely look to be produced…
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How The Silence Breeds
She was very sorry, she told me…she had lost her temper and yelled at him. A special ed veteran of many years in a generally well-funded district (and a wonderful teacher many had assured me), his developmental preschool teacher herself wasn’t supplied in my opinion with sufficient aids to meet the level of needs present…
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“Are We Pro-Life Or Pro-Birth?”
*Please note this is an extra post for the week, the main post which went up yesterday about Hannah will follow below this one A few weeks ago, I was sitting with my sister in a VUU sermon being given by their then interim minister, Rev. Wooden, and he clearly and concisely articulated a sentiment…
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The Autism Awareness Puzzle Piece Symbol Controversy: My Thoughts
We’re going to be taking a detour from what I originally mentioned discussing this week…but, I’ll be getting back to that, probably next week. Because I am still in burnout mode. Not just from the emotions of everything going on globally, within our local community, and within my own personal life- but because self-care is…