Tag: challenges for families of disabled individuals

  • Headed Into New Years With A Double Bang

    Some of you might, but if the statistics are accurate, more than 70% of you didn’t. And, I didn’t either. So let’s take a closer look again: And here’s what I found out after watching sweet, innocent Bandit rub his nose into the stamens of the lilies in the bouquet Andy brought me and deciding…

  • Public Comments and Open Letter on Proposed Changes to the AAC Policy for Division of Developmental Disabilities Recipients

    Earlier this week I submitted comments to the Division of Developmental Disabilities as part of a legally mandated public comment period for proposed changes to the policy that governs prior authorization for assistive speech device technology, or AAC. For a while now my posting schedule has been every Friday, however I felt like for those…

  • “Pray To Whatever Deity You Look To…”

    I’m not going to say who left the cup of water by my laptop, or who knocked it over. Neither actions were done by me, but I don’t consider either of those actions to represent the biggest misfire in this chain of events. I will admit to swearing when I saw what happened, and for…

  • “Behind the Mask I Wear…”

    Perhaps some of you may not have thought about it, but some of you may have given your imaginations brief rein to fill in the largely unwritten subtext of last week’s post. What does it feel like to stay awake entirely for one night and for parts of multiple nights after that holding and gently…

  • What These Eyes See

    When Tony and I have gone out into public spaces, eyes are almost always upon us. The eyes of those who saw our screaming son rip an earring out of my ear when I was putting him on my shoulders outside of a local Safeway a few years ago, and mutely watched as I squatted,…

  • Me, Myself, And My Mental Health

    Historically, I dread my own personal dental visits. I am Novocaine resistant, and I have had far too many dentists that never managed to get me numbed down enough to stave off a miserable experience for anything that needed to be taken care of. My most recent dentist (who sadly just moved to another state),…

  • So Lucky

    This week, I really wanted to pull up the keys of my laptop and wrap them around my thoughts to skip out on writing a post altogether. Situational burnout has settled in like rusted dust, like a slowly tightening choker pulling me into an emotional exhaustion thicker than quicksand. Sometimes it feels like I am…

  • Not A Privilege

    I am going to start off by posting some screen shots that I am going to ask each of you to bear patiently with me and read. They provide some context for my remarks this week. For me, this is something I believe should transcend politics. I am sure it is already evident to anybody…

  • What Comes Next? Cleaning For Sure…

    Well, Hannah and I have just finished watching another episode of Father Brown. We both like mysteries, though I am pretty certain after the first three episodes that Lady Felicia must have PTSD hiding behind her upper-crust gentility with as many murders as she happens upon. And, no, that is not all I’ve been doing…

  • Waking Up To The New Norm

    This is a post where I feel almost as if a leaf-blower is swooshing through the folds of my brain, whisking away words like decaying leaves and leaving me uncertain how to best proceed. Originally, I planned for a different topic. However, I do think local events of the past week need to be addressed.…