Tag: challenges for parents of individuals with disabilities
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Cuando El Estrés Me Molesta Mucho…
I spoke very minimal Spanish when our little man was first placed with and adopted into our family. What motivated me initially to continue to learn was our son, because I had wanted him to be able to have a conversation with his birth mom should he ever choose to want to meet and talk…
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Where Stress & Caregiving Collide
I had a series of revelations recently about what some of my more significant stressors are and how they are impacting my health. The contrast was made by comparing some blood pressure readings, interestingly enough. A couple of months ago I needed to take Tony in to a follow up I had with my allergist…
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When You Can’t Dupe Self-Care
Lately I have really enjoyed questing through my eye shadow collection to see if I can dupe looks I could produce by a newly launched palette containing a color story I like. Today I slowly moved my way through stash-shopping and creating my own variant of what is the most likely look to be produced…
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How The Silence Breeds
She was very sorry, she told me…she had lost her temper and yelled at him. A special ed veteran of many years in a generally well-funded district (and a wonderful teacher many had assured me), his developmental preschool teacher herself wasn’t supplied in my opinion with sufficient aids to meet the level of needs present…
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Not This Year
I am often asked what my plans are for Tony in terms of public or private schooling, especially around this time of year when school age children are typically headed off to one classroom or another. In previous years, my answer was there were important behavioral concerns we were addressing in therapy at home that…
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Being Real on the Sea of Life
I believe in keeping things as real as possible here, bearing in mind of course that I am committed to respecting the privacy levels requested for everyone who is in or interacts with our family. When I put pictures up showing some of my makeup, while my shots are not filtered or Photoshopped, I do…
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Rehabilitating It Merry Go Round
“Mama!” I heard Hannah call out this fearful exclamation as I slipped down the last four stairs in our house, emotionally crusted over from I can’t even begin to tell you how many sleep deprived middle of the night escapades with Tony. My physical reflexes were often slightly impaired and set to spastic that early…
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When *My* Body Says No…
I was somewhere between 18 months and two years of age (I suspect closer to the 18 months side because I am seventeen months older than my sister) the first time I remember being placed in a situation of overwhelming responsibility. My mother had gone somewhere or returned to work after having given birth, and…
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Maybe Someday
A few weeks ago, I resumed active participation once a day in community safety walks for Tony with both Casandra and Emily. We had told Tony that I couldn’t run yet, and he was trying his absolute best to control his urges to sprint ahead. During our first walk back with Emily, she asked me…
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On Life in a Snow Globe
Two weeks after I stopped shopping at Amazon, I made the mistake of putting up one of my e-mail addresses on our family’s profile…and then promptly took it down a week later because all I was getting were vendor requests and one person who admitted after several back and forth exchanges to being a curiosity…