Tag: developmental delays
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Good Enough
I have had more than one person ask me how I was doing in the wake of last week’s TouchChat deletion and “restore to backup” failure. Certainly, that was a stress burger with a side of “pain in the backside” fries, however it was not the only agenda busting problem that was occurring. Truth be…
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Bits & Pieces
Far too often it feels like my planned schedule has been ripped apart and hijacked by unexpected whirlwinds, and I end up bleeding time as I sprint against forces beyond my control, chasing the left over bits and pieces as they flutter aimlessly towards the ground through the swaying air. This week’s gale ripped through…
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Better Homes and Gardens We Are Not
In our church, like every other group in existence, there are some aspirational stereotypes for achieving personal excellence. If you are unfamiliar with our cultural orthodoxy for women, allow me to introduce you to our modern near-mythical maven. Please do not criticize her for trying to be all of these things, she’s under enough pressure…
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Rocking A World Of Constant Motion
When people meet Tony in an environment he’s less threatened by, I am often asked: “Is he always this active?” I can only go with the truth here, and that would be…Yes. Now go ahead and close your eyes, imagining that word as a flashing neon sign. While Tony certainly struggles to do certain movements,…
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The Stress Will Mess You Up
The afternoon of April 20th started out calmly. Andy and Hannah had left the home earlier in the day for an overnight church daddy-daughter camping activity, packing the commotion of preparations and excitement neatly away in the car with them. I had been telling Tony that they would be sleeping out with the trees and…
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You Say “Hello,” He Says “I’ve Gotta Go!”
By November of 2016 we had reached the point where Tony was no longer vomiting if people got too close to him, but it was still extremely challenging to get him into most public places. There are a number of reasons for that, many related to the differences in his sensory systems, but our little…
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May Gratitude & Reading
To Madi, For Her Kindness & Caring… As many of you know, there is another incredibly cool music therapist who works with Tony during one of his two weekly sessions with Emily. Madi has worked with Tony for over a year and a half now at NMTSA and, like Emily, has always believed in his…
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More Than What You See
One post can not even begin to contain adequate explanations for all of the challenges Tony has faced and continues to face on a daily basis. I have very little spare time, so it is a story I will continue to unfold slowly as I share with you bits and pieces of our journey each…
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#RedForEd
As reported in The Arizona Capital Times, Governor Ducey has proposed paying for teacher raises by sweeping funds from different agencies, including “$2 million in one-time funding for the developmentally disabled.” Some in our state have cast striking teachers as being difficult to satisfy. Here at the quiet crisis next door, we applaud them as…
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Being With Tony in Public
Hello! For those of you who might not know my name, my name is Hannah. I am the 11 year old daughter of the creator of this blog. My school district (and others too) are taking the Az Merit right now. While I was taking the test, I thought about Tony and how we would…