The Quiet Crisis Next Door

Tag: disabilities justice

  • June Gratitude & Some Reading

    Pauline When you first started working with our son, we were trying to expand his flexibility in working with providers without me present. The last year didn’t end up being the therapy experience we were planning for Tony. I know there were points where the teletherapy programs weren’t easy to implement for anybody. I can’t…

  • February Gratitude & A Very Short Bit of Reading

    To My Sweet Sister-in-Law, Randi I don’t even know what to say about the past month, except that never had I expected most of it to happen the way that it did. Randi, I know your proverbial plate passed the point of overflowing long ago. And yet, without hesitation and with nothing but cheerful kindness…

  • September Gratitude & Some Viewing

    To Miss J, Who has been Tony’s fabulous DDD Support Services Coordinator since the summer of 2018. Our very first meeting, you listened to what I told you our son needed and did your best to make it happen. I know the approval of specific services is not in your hands, but I am extremely…

  • Judging the Parents Shouldn’t be a Spectator Sport

    Many years ago, I had a friend with advanced degrees and the kindest heart. This person needed significant support with activities of daily living. I know the level of support required because I was trusted enough as a friend to be asked to help provide those services more than two decades ago so that the…

  • What These Eyes See

    When Tony and I have gone out into public spaces, eyes are almost always upon us. The eyes of those who saw our screaming son rip an earring out of my ear when I was putting him on my shoulders outside of a local Safeway a few years ago, and mutely watched as I squatted,…

  • On Ability, Access, and Representation

    Sometimes talking to anyone can be a tricky thing. I feel like an apology just as readily needs to grace my lips as anything else I could possibly say, because often when I have personally given offense, it was most certainly not intentional. What one person in a group finds offensive another does not, and…

  • August Gratitude & Some Reading

    Bob The person to whom this note is dedicated can no longer read it with mortal eyes, but he was given these words in person from me privately some time ago. I share them with you now as a brief commemoration for how a moment of thoughtfulness from him touched my life personally. I have…