Tag: intellectual disability
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Autism In The Community: When RFK Jr Talks His Way Into Autism Awareness Month, This Is What I Think You Should Know
Perhaps you’ve heard something about RFK Jr’s comments about autism recently, or you listened to it. Or you saw his follow up comments to Fox News that were posted on his Instagram. Hot off of paying our taxes all by myself as I have for more than 2 decades, deciding whether or not to file…
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Mismanagement Probably Not: A Second Open Letter Regarding Arizona DDD/ALTCS Funding Shortages
To our Arizona State Legislature and Governor Hobbs: I have read that some in our legislature have blamed the governor for mismanagement of DDD funds. And to Representative David Livingston and all of the other esteemed members of our state’s appropriations committee, I would like to propose considering that another explanation is quite possible to…
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Still Busy & Checking In
This isn’t a content heavy post, just a quick check in. We may have been silent here, but we’ve been busy. I’ve started the evaluations mentioned in last post, we did summer school with Tony, and we’re still working on therapy goals. Currently, he’s mastered tolerance of headphones with sound, so we’ve started prep work…
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Some Gratitude & A Quick Note
A few months back, they replaced our local swirly slide with the above…and Tony’s been afraid to go down it because the decline angle comes with increased sliding speed, which is harder for him with his sensory differences. This past week, he worked up the courage and found a way that worked for him to…
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“He Has Benefited From Having You Here”
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in…
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Maybe This Ain’t Your Mama’s Stress
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I…
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Scheduling Like Tony Schedules And Then Some…
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is…
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Seeing The Potential Versus The Problems
My sweet sister-in-law, Randi, sometimes babysits our son when I have medical appointments. For a recent appointment I had with my allergist, I got him dressed and asked him to keep his clothes on for the entire time his Aunt was here. Tony has a history of pretty intense tactile defensiveness as his skin nerves…
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More Than A Backdrop Or A Therapy Prop
There are times when I have encountered the sentiment in others that I don’t have much of a right to express any sort of discomforts over the personal challenges I have faced or the sacrifices I have made to provide the intensive level of support required for our son. He is the one with the…
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Can We See All The Sides?
I thought of all the ways I could write this post, and I decided just to wrap it around a screenshot from an e-mail I sent some friends on December 28, 2016. I am going to re-type it just following this in case the images don’t show up well for those who get my posts…