Me, 26 days after my cervical corpectomy this January, and me this morning. The scar has healed so nicely, you can barely tell I had this surgery by looking at me. Reading my writing though? Lol, that is an entirely different story… I spent months not writing here and we’re already back for my second
If this were an episode of something more titillating to view or read, the kind with rapt viewers eagerly awaiting a happy or scintillating ending, perhaps I might start this post with something like “dearest reader…” But no. This isn’t that kind of escapist retreat, nor can I predict a happy ending. A week ago
Perhaps you’ve heard something about RFK Jr’s comments about autism recently, or you listened to it. Or you saw his follow up comments to Fox News that were posted on his Instagram. Hot off of paying our taxes all by myself as I have for more than 2 decades, deciding whether or not to file
To our Arizona State Legislature and Governor Hobbs: I have read that some in our legislature have blamed the governor for mismanagement of DDD funds. And to Representative David Livingston and all of the other esteemed members of our state’s appropriations committee, I would like to propose considering that another explanation is quite possible to
This isn’t a content heavy post, just a quick check in. We may have been silent here, but we’ve been busy. I’ve started the evaluations mentioned in last post, we did summer school with Tony, and we’re still working on therapy goals. Currently, he’s mastered tolerance of headphones with sound, so we’ve started prep work
A few months back, they replaced our local swirly slide with the above…and Tony’s been afraid to go down it because the decline angle comes with increased sliding speed, which is harder for him with his sensory differences. This past week, he worked up the courage and found a way that worked for him to
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is
My sweet sister-in-law, Randi, sometimes babysits our son when I have medical appointments. For a recent appointment I had with my allergist, I got him dressed and asked him to keep his clothes on for the entire time his Aunt was here. Tony has a history of pretty intense tactile defensiveness as his skin nerves
