Before I start serving up the main course for this week’s topic, I’d like to start with a deeply joyful appetizer. For those of you who are unfamiliar with some of the risks for individuals with Sotos Syndrome, approaching 40% of kiddos with this genetic disorder have congenital heart defects. Because he was not presenting
Screenshots from an Instagram Story of an event at ICE protests occurring today in Mesa, Arizona, January 30, 2026 that hasn’t been reported on as of the time I am writing this by other mainstream local Arizona media. The first thing I want to clarify before I do anything else is that I am home
Me, 26 days after my cervical corpectomy this January, and me this morning. The scar has healed so nicely, you can barely tell I had this surgery by looking at me. Reading my writing though? Lol, that is an entirely different story… I spent months not writing here and we’re already back for my second
Perhaps you’ve heard something about RFK Jr’s comments about autism recently, or you listened to it. Or you saw his follow up comments to Fox News that were posted on his Instagram. Hot off of paying our taxes all by myself as I have for more than 2 decades, deciding whether or not to file
To our Arizona State Legislature and Governor Hobbs: I have read that some in our legislature have blamed the governor for mismanagement of DDD funds. And to Representative David Livingston and all of the other esteemed members of our state’s appropriations committee, I would like to propose considering that another explanation is quite possible to
This isn’t a content heavy post, just a quick check in. We may have been silent here, but we’ve been busy. I’ve started the evaluations mentioned in last post, we did summer school with Tony, and we’re still working on therapy goals. Currently, he’s mastered tolerance of headphones with sound, so we’ve started prep work
A few months back, they replaced our local swirly slide with the above…and Tony’s been afraid to go down it because the decline angle comes with increased sliding speed, which is harder for him with his sensory differences. This past week, he worked up the courage and found a way that worked for him to
I wonder how many parents take for granted that they can just drop their kids off at school or send them out the door to a bus stop and know that their kiddo is going to swim along through the year just fine without anything outside the expected start of the school year traditions being
A few days ago, I sat on my bed and cried as I repeatedly inhaled deeply a perfume I had tested out on my forearm, a fragrance with jasmine notes. Never in my life to this point have I been able to tolerate the smell of jasmine in the community or even as a background
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in
