Tag: ODD
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I’ll Take Risk Assessment Over “Singing in the Rain” Any Day…
I have always loved being out in the rain. I remember as a little girl, riding in the back of my grandfather’s uncovered truck bed as the drops splatted into and around me, M&M’s clutched in my hand, their colors bleeding out and melting, the clouds seemingly reaching down like fingers to wrap around my…
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Recovering Moments of Life Sublime
The increases we have seen developing in Tony’s tolerance for new places and novelty in routine have coalesced with his emerging control over his desire to use his body to get to what he wants in a way that allowed us to enjoy a hike this past weekend at Woods Canyon Lake. Perhaps it is…
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Some Thoughts About Why
Generally, many of the teens who went to my high school came from families that were far better off financially than mine. At some points, I was saving money given to me at Christmas and for my birthday by my grandmother and my Aunt Cile and Uncle Lawson…and I would use it to buy thrift…
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Celebrate Every Little Thing Like It’s Big
The stress in my life lately has been palpable and ravenous, requiring the delivery of an increasing diet of effort, guzzling sleep while leaving behind far too many regurgitated memories of middle of the night hours. Last night was the first night in several days I slept more than 6 hours. Tony was awake a…
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Celebrating 2 Years of Telehealth Speech Therapy Being More Successful Than The In Person Sessions 🙂
Tony has always, always hated speech therapy. For many years this was his least favorite therapy type, as every speech therapist who has ever worked with him can attest. Our little man understands a great deal more than most people realize (in both English and Spanish), but he still usually doesn’t want to communicate unless…
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Valentine’s In Pieces
With most every other post I have ever done about how things feel from my side, I add some sort of statement within that post acknowledging that I completely understand and do not judge people for feeling that the challenges our son has are outside their comfort levels when it comes to personally helping out…
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Revisiting Moments of “Grief and Rage”
Nearly 3 years ago, I shared with those of you reading our blog at that time some words of the hilarious guitar goddess Mrs. Smith to describe some of my feelings about some of the things people say to us about the circumstances we are in. At that time, I shied away from saying that…
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February Gratitude & Some Reading
To Eowyn The razor thin edges on so many words, the shattered shards of a strong divide, coated thickly with the dust of nearly a decade replaying only echoes of it all… a formidable array of obstacles that would have dissuaded many from trying to bridge such a potentially jagged and emotionally fraught gap. Thank…
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“What The Heart Wants…”
To be the mother of a child with profound disabilities is in many cases to wobble precariously along a thin ledge comprised of a great many sacrifices while trying not to completely loose yourself, yet feeling as if some days are still spent in free fall, searching for the person you could have been or…
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Community Safety Progress Presents
Hannah and I put up the outside Christmas lights by ourselves this year, and so Tony needed to accompany us up front. Historically, any sort of outside task required multiple (you should read that as every couple of minutes at least) sprints chasing Tony down as he laughingly ran out of our yard. But when…