Tag: POTS
-
Navigating The Stress Of Allergies, POTS, And All Things Health & Being Needed On The Therapy Team
For nearly a year now, I have been bobbing up and down on the waves of life, trying not to get swamped or washed overboard as I navigated managing my health and maintaining the active role I must play in all of Tony’s therapy programs that transpire outside of our house. These programs are essential…
-
“Bring Me [Back] To Life”
The past several years have felt like life coming at me as I stood, like Amy Lee in the video for Bring Me To Life, on one circumstantial ledge after another, trying to climb up from an effort to solve one problem to a solution for the next. And every time I get to that…
-
When Stress & Self-Care Rain Down
I have lived somewhere in this metropolis for 29 of the past 31 years, split into two periods of time. I don’t ever recall a time where the rain poured with such steady thickness for so many hours as it did last Sunday, but I had chosen to ignore to the flash flood warning messages…
-
July Gratitude & Some Reading
Acadia Long ago you first observed our son during your internship, but when you became the lead NMT therapist on his case it was under pandemic conditions using telehealth that I honestly never expected to be successful. You’ve been in those sessions. You remember what the first few weeks were like (thank you for not…
-
Being Real on the Sea of Life
I believe in keeping things as real as possible here, bearing in mind of course that I am committed to respecting the privacy levels requested for everyone who is in or interacts with our family. When I put pictures up showing some of my makeup, while my shots are not filtered or Photoshopped, I do…
-
Rehabilitating It Merry Go Round
“Mama!” I heard Hannah call out this fearful exclamation as I slipped down the last four stairs in our house, emotionally crusted over from I can’t even begin to tell you how many sleep deprived middle of the night escapades with Tony. My physical reflexes were often slightly impaired and set to spastic that early…
-
Maybe Someday
A few weeks ago, I resumed active participation once a day in community safety walks for Tony with both Casandra and Emily. We had told Tony that I couldn’t run yet, and he was trying his absolute best to control his urges to sprint ahead. During our first walk back with Emily, she asked me…
-
On Life in a Snow Globe
Two weeks after I stopped shopping at Amazon, I made the mistake of putting up one of my e-mail addresses on our family’s profile…and then promptly took it down a week later because all I was getting were vendor requests and one person who admitted after several back and forth exchanges to being a curiosity…