Tag - rare trisomy 12 posts

Regarding Proposed Cuts To Services for the Developmentally Disabled in Arizona

An Open Letter to Governor Hobbs, the Arizona State Legislature, and each of you: In this house, my kiddo has now been without PT and OT for more than a month as the situation I wrote about in my last post remains an active and unresolved matter. So in what would have been an OT

Some Thoughts About Why

Generally, many of the teens who went to my high school came from families that were far better off financially than mine. At some points, I was saving money given to me at Christmas and for my birthday by my grandmother and my Aunt Cile and Uncle Lawson…and I would use it to buy thrift

Checking Out For Two Weeks

An alternate title to this might be “welcome to the sometimes very scary world of special needs dentistry.” When you have a kiddo who needs sedation or anesthesia, even outside of a pandemic, you can wait months to get a cavity repaired. Even when a bigger chunk of the tooth is gone (as we encountered

“Behind the Mask I Wear…”

Perhaps some of you may not have thought about it, but some of you may have given your imaginations brief rein to fill in the largely unwritten subtext of last week’s post. What does it feel like to stay awake entirely for one night and for parts of multiple nights after that holding and gently

Judging the Parents Shouldn’t be a Spectator Sport

Many years ago, I had a friend with advanced degrees and the kindest heart. This person needed significant support with activities of daily living. I know the level of support required because I was trusted enough as a friend to be asked to help provide those services more than two decades ago so that the

On Ability, Access, and Representation

Sometimes talking to anyone can be a tricky thing. I feel like an apology just as readily needs to grace my lips as anything else I could possibly say, because often when I have personally given offense, it was most certainly not intentional. What one person in a group finds offensive another does not, and

Voicing My Support for NMTSA

My loved ones and readers new to our blog, up until today I had planned to tie this month’s posts together with more information about dental care and sensory issues. However, early this morning I read a letter that left me struggling to keep the mascara from streaking discolored rivulets across my face. After taking

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