Tag: regulation
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“You Would Cry Too”
For years, I have lived in a state of hypervigilance. So many seemingly simple moments for other families are packed with opportunities for my son to be seriously harmed. Some things Tony does because he either lacks a more complete understanding or currently can’t hold onto what will happen to him if he succeeds in…
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Voicing My Support for NMTSA
My loved ones and readers new to our blog, up until today I had planned to tie this month’s posts together with more information about dental care and sensory issues. However, early this morning I read a letter that left me struggling to keep the mascara from streaking discolored rivulets across my face. After taking…
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Team Tony Taking on the Town
I want you to imagine with as much detail as possible plunging into an encounter with your deepest fears- the ones that instantly and efficiently sever the communication between your intellect and your reactions. These are the things that cause you to panic, raise your voice in fear, flee, or propel you to act before…
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Medication & Regulation Roller Coaster
I feel like this past month should have come with warning labels. Warning: Medications often have disruptive side effects. Warning: Sometimes this roller coaster flips of the tracks when life changes too quickly. Warning: Once you step on board, not everything that happens on this ride is in your control. So, I’m going to give…
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Tony’s Physical Therapy Walk Through
I am going to begin this week with a note that mostly applies to those of you who have signed up to receive my posts via e-mail. Thank you for taking time to read with us each week, by the way 🙂 As I’m sure some of you have noticed, the plugin that converts my…
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September Gratitude & Doing
To the Awesome Ms. E, Tony’s Super Cool PT Ms. E came into our world a little over a year ago after her clinic responded to a vendor call from our support services coordinator seeking an in-home physical therapist willing to work with our little man. In-home PT’s are hard to come by on our…
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Good Enough
I have had more than one person ask me how I was doing in the wake of last week’s TouchChat deletion and “restore to backup” failure. Certainly, that was a stress burger with a side of “pain in the backside” fries, however it was not the only agenda busting problem that was occurring. Truth be…
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Sometimes, I’m Feeling the “Ouch”
Some days, my body feels like a cup of herbal exhaustion tea over-steeped, having been forgotten in a steady steam of distractions to become saturated with fatigue and aches. There can be no denying that frequently Tony’s therapy sessions and outings end up looking like extra workouts for me. Sometimes when people witness or see…
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Better Homes and Gardens We Are Not
In our church, like every other group in existence, there are some aspirational stereotypes for achieving personal excellence. If you are unfamiliar with our cultural orthodoxy for women, allow me to introduce you to our modern near-mythical maven. Please do not criticize her for trying to be all of these things, she’s under enough pressure…
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Keeping Up With the Beat of NMT
Change is like an erratic pulse…sometimes the beats are slow and the space between can stretch out, only to sprint wildly towards a rapidly winded staccato. This has been a month where we’re experiencing more changes and emotionally I’ve been a bit more breathless, as two of Tony’s providers (Madi and Rosette) have accepted…