The Quiet Crisis Next Door

Tag: sensory modulation disorder

  • Mask Tolerance and Tactile Defensiveness

    We are working on so many therapy targets right now I honestly struggled a bit to decide which one to lead in with this week. I decided that what made the most inherent sense to discuss is the work we are doing towards helping Tony gain increased tolerance for wearing a mask, as our ability…

  • Judging the Parents Shouldn’t be a Spectator Sport

    Many years ago, I had a friend with advanced degrees and the kindest heart. This person needed significant support with activities of daily living. I know the level of support required because I was trusted enough as a friend to be asked to help provide those services more than two decades ago so that the…

  • What These Eyes See

    When Tony and I have gone out into public spaces, eyes are almost always upon us. The eyes of those who saw our screaming son rip an earring out of my ear when I was putting him on my shoulders outside of a local Safeway a few years ago, and mutely watched as I squatted,…

  • On Ability, Access, and Representation

    Sometimes talking to anyone can be a tricky thing. I feel like an apology just as readily needs to grace my lips as anything else I could possibly say, because often when I have personally given offense, it was most certainly not intentional. What one person in a group finds offensive another does not, and…

  • So Lucky

    This week, I really wanted to pull up the keys of my laptop and wrap them around my thoughts to skip out on writing a post altogether. Situational burnout has settled in like rusted dust, like a slowly tightening choker pulling me into an emotional exhaustion thicker than quicksand. Sometimes it feels like I am…

  • Not A Privilege

    I am going to start off by posting some screen shots that I am going to ask each of you to bear patiently with me and read. They provide some context for my remarks this week. For me, this is something I believe should transcend politics. I am sure it is already evident to anybody…

  • Giving the Universe its Due

    After I ended last week’s post by talking a tiny bit about some of my personal health history, I figured if I didn’t put up something quick each week some of you might worry I was sick or dead. While neither of those conditions currently apply, I am going to keep this shorter and perhaps…

  • Speech Device Update: Denial Received & Initial Response

    Today, Andy and I took turns waiting at home to sign for a letter from the department of the Arizona Division of Developmental Disabilities that handles applications for speech devices regarding their ultimate decision on the recommendations of the AAC (Augmentative and Alternative Communication) evaluator. For those of you new to this blog, I will…

  • Vacation for Two

    Our last family vacation happened over two years ago. The extent of the work required to pull off that trip successfully left me feeling far more strained and stressed than if we’d stayed at home. Frankly I can’t recall a time when I was so pleased to return home. For Hannah though, we had still…

  • New Year’s Mombie

    Miss R is the sweetest. Our little band of public therapy rompers encounter her sometimes at one of our local Target stores. She of the fabulously sparkly scarf, brimming with kindly energy and enthusiasm, asked me January 1st, 2020 how my day was going. Only after hearing the sepulchral dustiness of my answer, and glancing…