Tag: sensory
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You Say “Hello,” He Says “I’ve Gotta Go!”
By November of 2016 we had reached the point where Tony was no longer vomiting if people got too close to him, but it was still extremely challenging to get him into most public places. There are a number of reasons for that, many related to the differences in his sensory systems, but our little…
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A Special Needs Birthday
Hey, guys! I’m back with another post! B) Last week, my brother turned 6. It was a challenge preparing his birthday celebration 1St , NO CAKE. My brother can’t have gluten and HATES frosting. So….. what do ya do? Tony loves ice cream, so we got some for his birthday. Also, NO CANDLES! Why would…
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Being With Tony in Public
Hello! For those of you who might not know my name, my name is Hannah. I am the 11 year old daughter of the creator of this blog. My school district (and others too) are taking the Az Merit right now. While I was taking the test, I thought about Tony and how we would…
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I Survived March 20th, March 21st, March…
Tony feeds off of the emotions of those around him, especially people he deeply loves. So if a member of the family of his heart is having a bad day or rough moment, he can rapidly careen out of his own emotional equilibrium. Sometimes these situations can cause deviations to the schedule he’s used to.…
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Emily Talks NMT & Tony
Guest Post by Emily, NMTSA Therapist Hi to all those reading this blog. I could go on and on about how amazing this family is and how much joy it brings me to work with them, however, my objective is to give you a knowledge base on what Neurological Music Therapy (NMT) is and an…
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Torn Between the Two
I could hear the sound of children talking excitedly and calling to one another before we even crossed the doors. Inside, the noise was everything you would expect from an elementary school assembly devoted to building school spirit and honoring the achievements of certain students. A few teachers were leading some of the kids in…
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Never as Easy as a Picture Makes it Seem
A picture hints at a story like a cuttlefish…a moment of time is captured, and it looks a certain way. If the shutter closed one second quicker or is slightly delayed, perhaps a very different story would be implied. We all know pictures can give life to a lie…they can be redrawn so that nothing…
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Photo Field Trip Into Therapy Territory
This week we’re journeying a bit into Tony’s current therapy territory so that each of you can see some of what we spend so much time doing. There are going to be lots of photos with brief explanations about what we are doing in them to provide all of the support we possibly can for…
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The Heavens Will Cry For You
Initially, I had planned a different topic for this week, but my emotions have led me here instead. I tend to be that way…when I commit to something (like writing this blog), I will plot and plan and map it out a ways into the future, but sometimes I find something that calls to my…
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Surviving My Post Amazon World
Diagnosis labels shouldn’t matter to people we don’t know…but they do. I wish I was able to walk into a store without having to explain so much as one of my son’s conditions…but I can’t. If you’re a parent of young children, you know…no matter how much you treasure your kiddos, store shopping with them…