Tag: Sotos Syndrome
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What Some Kiddos Need To Stay Afloat Through School Changes
I wonder how many parents take for granted that they can just drop their kids off at school or send them out the door to a bus stop and know that their kiddo is going to swim along through the year just fine without anything outside the expected start of the school year traditions being…
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Travel Size Therapy Note
A few days ago, I sat on my bed and cried as I repeatedly inhaled deeply a perfume I had tested out on my forearm, a fragrance with jasmine notes. Never in my life to this point have I been able to tolerate the smell of jasmine in the community or even as a background…
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Quiet Moments Of Puzzle Joy
There is so much uncertainty in life. A great many people before me have said it, perhaps many more after me. The quiet successes and happy moments in the now have to be the joy we live for, because the rest is just a maybe, a hopefully…a maybe, hopefully some day. But today, this day,…
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Life Always Giving Us New Therapy Goals
Things have remained pretty busy over here, so I am going to keep this post short and sweet. Yep, it was strep. He’s been on antibiotics for more than a week now. And the appointment to be tested with his primary care made it clear there’s yet another thing we need to help him learn…
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“He Has Benefited From Having You Here”
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in…
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The Schedule’s Packed, But It Creates More Than Stress
Most days are packed. Up at 4:45, giving the kids their meds, getting ready to walk around 5:30 with Tony, neti pot, yoga, rower, shower, makeup, drive into school, participate in everything that might be required there, drive home, be present for anything his ABA RBT or BCBA needs, do some chores when they don’t…
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Maybe This Ain’t Your Mama’s Stress
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I…
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The Gift Of The Christmas Germs
There’s no way a gift bag, fancy wrapping, ribbons, or a bow would hide that this year, I felt stretched thin enough that I simply slapped traditional veneer on the right spots heading up to the holiday. So what we were doing kinda looked outwardly like appropriate festivities, but the feeling didn’t quite reach into…
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Seeing The Potential Versus The Problems
My sweet sister-in-law, Randi, sometimes babysits our son when I have medical appointments. For a recent appointment I had with my allergist, I got him dressed and asked him to keep his clothes on for the entire time his Aunt was here. Tony has a history of pretty intense tactile defensiveness as his skin nerves…
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“Slow and Steady…”
As you read this, I want you to envision if this were your reality, how the world would feel, how you would act. Imagine even something so common as foam soap could make you gag and vomit if it touched your skin, and that most everything that touched your skin caused pain no matter how…