The Quiet Crisis Next Door

Tag: Sotos Syndrome

  • A Response To Raising Special Kids’ Position on Waiver Proposal 1115: An Open Letter to RSK And The Arizona AHCCCS Administration

    Yesterday afternoon, I read the public response from Raising Special Kids about AHCCCS 1115, the proposed CMS waiver that seeks to extend some provisions allowing parents to provide attendant care to their children, while discontinuing others, namely allowing parents to become the paid habilitative therapy providers. I feel it is important for me to share…

  • Habilitation Needs To Be In Waiver To Meet Member Needs: An Open Letter To Arizona AHCCCS Administration

    My name is Ariana T and my son, Anthony (Tony) has multiple qualifying DDD diagnoses. He has complex behavioral and therapeutic needs, but has demonstrated progress through his therapies that have allowed him to gain skills he otherwise would not have had, thus reducing the cost of providing future services to him.  For the past…

  • Cuando El Estrés Me Molesta Mucho…

    I spoke very minimal Spanish when our little man was first placed with and adopted into our family. What motivated me initially to continue to learn was our son, because I had wanted him to be able to have a conversation with his birth mom should he ever choose to want to meet and talk…

  • Any Moment Can Become Therapy

    I had stepped out of the house during the last few minutes of physical therapy earlier this week to take out the trash. When I came back in, I noticed Tony was limping as he walked over to his speech device and asked me to help him. Apparently he had used his foot to move…

  • Where Stress & Caregiving Collide

    I had a series of revelations recently about what some of my more significant stressors are and how they are impacting my health. The contrast was made by comparing some blood pressure readings, interestingly enough. A couple of months ago I needed to take Tony in to a follow up I had with my allergist…

  • Gonna Pin The Positive…

    My body was humming cheerily this morning after jogging nearly 20 minutes of our outing to practice tricycle skills. I just finished my second cup of coffee, and it makes me think about how much I have to be grateful for even when things are busy. Two long years it has taken to build up…

  • When Hope Blooms Happy Moments

    A happy moment can bloom more quickly than expected from the seeds of hope. In my gut, I felt like Arrowhead was the place we needed to do our crowd work with Tony on March 31st. I noticed as we were pulling in that the Funbox park was up and functional, and I told Andy…

  • The Dirt King Rides Again

    A few years ago, before the start of the pandemic, Miss Emily and I were trying to work with Tony to improve his tricycling skills during a habilitative therapy session. At that time, we were still experiencing easily a dozen or more attempts from him to run off per any type of outing. There was…

  • Something New, Something Zoo

    Friends, Family, & Loved Ones: I am going to be taking the next month off from writing here. I am stressed. I am overwhelmed. There’s a lot going on, and we’re once again needing to support a more beefed up therapy schedule as our son’s new ABA provider has begun services this week. There are…

  • Picturing The Path Of Increasing A Few Functional Skills In Public Spaces

    My loved ones, I am going to keep this week’s post pretty short. I’ve been eating stress for breakfast, lunch, and dinner lately and I’d like to go regurgitate a workout and hunt through the internal wreckage for some glimmer of inner peace outside of the glittery shimmers gracing my eyelids. Even when that’s how…