Tag: Sotos
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Dental Cleaning With Sedation: Prep & Updates
As I have briefly (for me, anyway) discussed before, dental visits and procedures are a bit different for Tony than your average kiddo. Portions of the exam and visit routinely handled without anesthetics or sedation absolutely require either of those for him to accomplish them at this time…for our son, his sensory differences, anxiety, ability…
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Working it out in Physical Therapy
A few months ago, the clinic Tony goes to for physical therapy completed construction on an outside gym. This additional equipment has charmed his giggles and bubbled up bursts of joy each week he works outside with Ms. E, his physical therapist of nearly two years. When the weather won’t allow for work outdoors, his…
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“Can’t See the Forest for the Trees”
There is an idiom that echoes and chases after me from deeper memories: “you can’t see the forest for the trees.” Maybe there are patches of grass on a balding bit of earth, or moss-covered rocks, and birds that warble out jubilant notes as they wing through the sun-glistened air. But if the trees are…
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“You Have No Power Over Me”
Originally, I had planned to discuss the sleep-related challenges Tony had during his early years in this week’s post. But honestly, the last two posts- by nature of the circumstances laid bare- starkly avoided most anything approaching cheer and even I need a break from that. Often what we have here is not simply a…
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Can’t Do it All, Y’all
When I described our first meeting with J.N. a couple of weeks ago, I kept the cover firmly closed on the subject of my own self-care. This is I think an incredibly important subject when it comes to families of individuals with extensive needs, but experiences can vary widely and there are the rights and…
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The Trouble With Hotels
In November of 2017, our family took a long-planned trip to Disneyland. That trip, and the extensive work we did to help Tony prepare for it, is mostly a topic of a future post. I suspected (translation: totally knew it) we could be in for a few challenging moments given his sensory differences. However, I…
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“To Diagnose or Not To Diagnose”
Hamlet was confused, but you shouldn’t be. When we were first starting our family’s diagnostic journey for Tony, I had some people express to me that I should not be seeking any sort of diagnosis for him because those labels follow a person for life. And I have been asked by some their opinions about…
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“This is Halloween…”
For the past few weeks, decorations have begun pushing up through the soil and fluttering around the tree branches of one home after another in our neighborhood. When I was younger, I can’t remember anyone beginning to decorate for Halloween so early. And I know that for some of you, the upcoming week may already…
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The Learning Game
From where we left off on last week’s post, you can see that Tony has what are called “highly splintered skills.” This means that he’s doing much better in some areas than others. Currently, the gross motor skills we talked about last week are not the highest functioning domain for our little man. Tony’s highest…
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Tony’s Physical Therapy Walk Through
I am going to begin this week with a note that mostly applies to those of you who have signed up to receive my posts via e-mail. Thank you for taking time to read with us each week, by the way 🙂 As I’m sure some of you have noticed, the plugin that converts my…