Tag: Trisomy 5Q
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“Slow and Steady…”
As you read this, I want you to envision if this were your reality, how the world would feel, how you would act. Imagine even something so common as foam soap could make you gag and vomit if it touched your skin, and that most everything that touched your skin caused pain no matter how…
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Habilitation Needs To Be In Waiver To Meet Member Needs: An Open Letter To Arizona AHCCCS Administration
My name is Ariana T and my son, Anthony (Tony) has multiple qualifying DDD diagnoses. He has complex behavioral and therapeutic needs, but has demonstrated progress through his therapies that have allowed him to gain skills he otherwise would not have had, thus reducing the cost of providing future services to him. For the past…
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Any Moment Can Become Therapy
I had stepped out of the house during the last few minutes of physical therapy earlier this week to take out the trash. When I came back in, I noticed Tony was limping as he walked over to his speech device and asked me to help him. Apparently he had used his foot to move…
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Where Stress & Caregiving Collide
I had a series of revelations recently about what some of my more significant stressors are and how they are impacting my health. The contrast was made by comparing some blood pressure readings, interestingly enough. A couple of months ago I needed to take Tony in to a follow up I had with my allergist…
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Gonna Pin The Positive…
My body was humming cheerily this morning after jogging nearly 20 minutes of our outing to practice tricycle skills. I just finished my second cup of coffee, and it makes me think about how much I have to be grateful for even when things are busy. Two long years it has taken to build up…
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When Hope Blooms Happy Moments
A happy moment can bloom more quickly than expected from the seeds of hope. In my gut, I felt like Arrowhead was the place we needed to do our crowd work with Tony on March 31st. I noticed as we were pulling in that the Funbox park was up and functional, and I told Andy…
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The Dirt King Rides Again
A few years ago, before the start of the pandemic, Miss Emily and I were trying to work with Tony to improve his tricycling skills during a habilitative therapy session. At that time, we were still experiencing easily a dozen or more attempts from him to run off per any type of outing. There was…
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Picturing The Path Of Increasing A Few Functional Skills In Public Spaces
My loved ones, I am going to keep this week’s post pretty short. I’ve been eating stress for breakfast, lunch, and dinner lately and I’d like to go regurgitate a workout and hunt through the internal wreckage for some glimmer of inner peace outside of the glittery shimmers gracing my eyelids. Even when that’s how…
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Why We Can’t Walk Around All Sensory Differences, In My Opinion
A couple of weeks ago, there was a carnival being held on the ballpark field of the elementary school near our house. I think part of optimizing efficacy for what we are trying to help our son achieve is being aware of events occurring in our neighborhood and integrating them into his therapy work. And…