For years, I have lived in a state of hypervigilance. So many seemingly simple moments for other families are packed with opportunities for my son to be seriously harmed. Some things Tony does because he either lacks a more complete understanding or currently can’t hold onto what will happen to him if he succeeds in
A few months ago, the clinic Tony goes to for physical therapy completed construction on an outside gym. This additional equipment has charmed his giggles and bubbled up bursts of joy each week he works outside with Ms. E, his physical therapist of nearly two years. When the weather won’t allow for work outdoors, his
Change is like an erratic pulse…sometimes the beats are slow and the space between can stretch out, only to sprint wildly towards a rapidly winded staccato. This has been a month where we’re experiencing more changes and emotionally I’ve been a bit more breathless, as two of Tony’s providers (Madi and Rosette) have accepted
When people meet Tony in an environment he’s less threatened by, I am often asked: “Is he always this active?” I can only go with the truth here, and that would be…Yes. Now go ahead and close your eyes, imagining that word as a flashing neon sign. While Tony certainly struggles to do certain movements,
