Ariana's Posts

341 posts

September Gratitude & Some Viewing

To Miss J, Who has been Tony’s fabulous DDD Support Services Coordinator since the summer of 2018. Our very first meeting, you listened to what I told you our son needed and did your best to make it happen. I know the approval of specific services is not in your hands, but I am extremely

Judging the Parents Shouldn’t be a Spectator Sport

Many years ago, I had a friend with advanced degrees and the kindest heart. This person needed significant support with activities of daily living. I know the level of support required because I was trusted enough as a friend to be asked to help provide those services more than two decades ago so that the

On Ability, Access, and Representation

Sometimes talking to anyone can be a tricky thing. I feel like an apology just as readily needs to grace my lips as anything else I could possibly say, because often when I have personally given offense, it was most certainly not intentional. What one person in a group finds offensive another does not, and

August Gratitude & Some Reading

Bob The person to whom this note is dedicated can no longer read it with mortal eyes, but he was given these words in person from me privately some time ago. I share them with you now as a brief commemoration for how a moment of thoughtfulness from him touched my life personally. I have

A Brief Note to My Subscribers

This past week, there was a non-COVID related death in our extended family. I will be taking the next two weeks off from posting and writing to provide extra support to my children as they process this loss, and to avoid vying for the time/attention of those in our family who will also be providing

Me, Myself, And My Mental Health

Historically, I dread my own personal dental visits. I am Novocaine resistant, and I have had far too many dentists that never managed to get me numbed down enough to stave off a miserable experience for anything that needed to be taken care of. My most recent dentist (who sadly just moved to another state),

So Lucky

This week, I really wanted to pull up the keys of my laptop and wrap them around my thoughts to skip out on writing a post altogether. Situational burnout has settled in like rusted dust, like a slowly tightening choker pulling me into an emotional exhaustion thicker than quicksand. Sometimes it feels like I am

July Gratitude & Some Doing

Emily I know that there are plenty of people I still owe a gratitude note, and some of you may remember that Emily has already received one a little over two years ago. But that was way back when she was Tony’s music therapist, with a very different role and significantly less time and involvement

Some Things Are More Important

I am rarely at a loss for words to write or say. Our current local surge of COVID infections has left me wading through a dim bog of uncertainty. Far too many in our communities have lost loved ones, others are still battling for their health, and many people have lost their jobs…so I feel

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