Category: Ariana’s Posts
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So Lucky
This week, I really wanted to pull up the keys of my laptop and wrap them around my thoughts to skip out on writing a post altogether. Situational burnout has settled in like rusted dust, like a slowly tightening choker pulling me into an emotional exhaustion thicker than quicksand. Sometimes it feels like I am…
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July Gratitude & Some Doing
Emily I know that there are plenty of people I still owe a gratitude note, and some of you may remember that Emily has already received one a little over two years ago. But that was way back when she was Tony’s music therapist, with a very different role and significantly less time and involvement…
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Some Things Are More Important
I am rarely at a loss for words to write or say. Our current local surge of COVID infections has left me wading through a dim bog of uncertainty. Far too many in our communities have lost loved ones, others are still battling for their health, and many people have lost their jobs…so I feel…
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Not A Privilege
I am going to start off by posting some screen shots that I am going to ask each of you to bear patiently with me and read. They provide some context for my remarks this week. For me, this is something I believe should transcend politics. I am sure it is already evident to anybody…
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Troubleshooting Telehealth Therapy
I had the pleasure of catching up a bit with Gena on the phone yesterday while Emily did some therapy work with Tony. I enjoy our conversations so much I barely registered that we had been talking for nearly 45 minutes before I had to end the call to participate in an OT telehealth session.…
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Gratitude & Some Reading
Casandra Casandra, when you first came to meet our family more than a year ago, I was scared to hope that this was a job you would be interested in taking. I laced up emotional armor to shield my heart from disappointment, and instead found blessings and more reasons than I could ever list to…
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Going Briefly Off-Topic: My Take on Current Events
So many of our communities are boiling and burning right now. For days, I have struggled to know what to say about this, but felt that I would indeed want to share some form of comment with my loved ones. While I have certainly not known what it was like to be targeted by police…
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R.I.P. Speech Device
This is one of those weeks where I was initially planning on writing about an entirely different subject. I am going to move that previously planned post to a different week because I feel current events require a change in plans. Today, Tony’s original speech device died (this is the device he’s been using since…
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Floating Trough a Flood of Changes
I was talking to our son’s geneticist today (who is sadly, accepting a new job elsewhere this summer- sob!!!), and we were discussing how hard changes can be for Tony. She commented that the kinds of changes we have all been experiencing in our communities can be hard for anybody. When a kiddo has as…
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Part of Our New Norm: Infection Control & Home Based Therapy
My, how the world has changed. So, let’s just start with me admitting I am not one of those individuals that enjoys cleaning. Nope. Not even a little bit. Next, let’s just add that because of my own allergy and asthma related symptoms (combined with Tony’s desire to lick many surfaces best left unmouthed), I…