Category: Ariana’s Posts

  • Every Day is “Groundhog Day”

    They say life isn’t like the movies, as if every day’s agenda will be definitively pulled from a drop menu of easily parsed platitudes. Some days can not be bound by such lists and assumptions. Entire years even can be unrestrainedly defiant of them. In this house we have been given a different script to…

  • Hannah’s Time Off

    When Hannah asked me if she could write regular posts for our family’s blog, I supported her but have given her the option of taking time off if she needs to. Typically she writes her posts over the weekend before they run because of the time demands for schooling during the week. This past Saturday…

  • October Gratitude & Reading

    To Andy, Gratitude That Can’t Tell it All Each week when I tell our family’s stories, there are some conspicuous holes. Our blog may look like a game of “Where’s Andy?” but in our household we know the answer. My love, thank you for working long and difficult hours to support our family. Thank you…

  • Public Therapy Fork in the Road

    This post is going on another one of those topical detours. Prior to Tony’s most recent diagnosis and medication, I had anticipated discussing a different topic. However, it is clear to me already after just a few days on his current med that this is going to dramatically change what public therapy outings look like…

  • “The Heart Melteth”

    About 10 a.m. Monday morning I got a phone call from the office of Tony’s new developmental pediatrician. They had a cancellation for Tuesday, and were wondering if I’d like to take that appointment. Yes, yes, and heck yes! And then it hit me…I hadn’t filled out any of the gargantuan paperwork packet yet for…

  • The Learning Game

    From where we left off on last week’s post, you can see that Tony has what are called “highly splintered skills.” This means that he’s doing much better in some areas than others. Currently, the gross motor skills we talked about last week are not the highest functioning domain for our little man. Tony’s highest…

  • Tony’s Physical Therapy Walk Through

    I am going to begin this week with a note that mostly applies to those of you who have signed up to receive my posts via e-mail. Thank you for taking time to read with us each week, by the way 🙂 As I’m sure some of you have noticed, the plugin that converts my…

  • September Gratitude & Doing

    To the Awesome Ms. E, Tony’s Super Cool PT Ms. E came into our world a little over a year ago after her clinic responded to a vendor call from our support services coordinator seeking an in-home physical therapist willing to work with our little man. In-home PT’s are hard to come by on our…

  • Good Enough

    I have had more than one person ask me how I was doing in the wake of last week’s TouchChat deletion and “restore to backup” failure. Certainly, that was a stress burger with a side of “pain in the backside” fries, however it was not the only agenda busting problem that was occurring. Truth be…

  • Bits & Pieces

    Far too often it feels like my planned schedule has been ripped apart and hijacked by unexpected whirlwinds, and I end up bleeding time as I sprint against forces beyond my control, chasing the left over bits and pieces as they flutter aimlessly towards the ground through the swaying air. This week’s gale ripped through…