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Parents As Paid Providers Actually Getting The Job Done, Another Open Letter To Governor Hobbs and the Arizona State Legislature

Me, 26 days after my cervical corpectomy this January, and me this morning. The scar has healed so nicely, you can barely tell I had this surgery by looking at me. Reading my writing though? Lol, that is an entirely different story… I spent months not writing here and we’re already back for my second

Saved ALTCS Roughly $67,000 And Counting In Diapers? An Open Letter To Governor Hobbs and the Arizona State Legislature

This evening as I was eating my dinner, I received a text from my sister asking if I’d seen the e-mail yet from DDD. I quickly scanned it, and saw that Governor Hobbs is calling for AHCCCS to go through emergency rule making to reevaluate the new assessment tool and provide a process for those

Mourning The Near Total Destruction of AZ DDD Habilitation

If this were an episode of something more titillating to view or read, the kind with rapt viewers eagerly awaiting a happy or scintillating ending, perhaps I might start this post with something like “dearest reader…” But no. This isn’t that kind of escapist retreat, nor can I predict a happy ending. A week ago

When Mast Cells Get Grumpy & Other Updates

Yeah, that’s my stomach, and my fit bit. Photos by Ari and Ms. S That’s a shot of my skin with 2 Allegra, 100 mg of hydroxyzine, and prednisone in my system…and the hives still weren’t controlled or gone. Didn’t start getting better until 4 days into the prednisone. Most of my body looked like

Two And Beyond

You may be thinking that title doesn’t make much sense. Some things in life just don’t make sense, not to me, not to you. Or maybe something that seems sensible to you won’t seem that way to me or vice versa. Our republican state legislators this week proposed future DDD funding measures in HB 2945

Talking Some Science on Allergy Meds & CBD

Ok, so I have some possible answers to explain the effects I observed when taking CBD and my usual cocktail of meds. Because it’s late in my day, I’m not really taking the time to finesse this. This is important to pay attention to for anyone, because if you go to see your doctor to

March Gratitude & Some Self-Care For The Stressed Viewing/Stuff

Y’all, my schedule is so full I don’t usually even cook for myself these days. I make myself salads. Yogurt bowls. Oatmeal. Smoothies. Maybe some pasta (if it will cook in less than 10 minutes). So as much as I would like to detail all the ways I am grateful for the special education team

Working Around Sensory-Related Bathroom Fears

When considering what will be the most successful way to increase Tony’s ability to tolerate or be successful in certain environments whether it be with crowds or for structured activities, I have to focus on multiple elements that need to be addressed at the same time. One of the things I have noticed in the

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