This week’s post is going to be super short. As a mom, both of my children hold equal pieces of my heart. Because I respect Hannah’s wishes for what she wants shared on-line, she isn’t as often on the pages of our blog right now. But I am just as honored to be her mom.
Pauline When you first started working with our son, we were trying to expand his flexibility in working with providers without me present. The last year didn’t end up being the therapy experience we were planning for Tony. I know there were points where the teletherapy programs weren’t easy to implement for anybody. I can’t
This week is another photographed journey, but this time we’re going to be moving past the challenges experienced in providing teletherapy to discuss the goals and therapeutic interventions for Tony’s NMT. We have been working on helping Tony increase his flexibility and spontaneous communication using Neurologic Music Therapy (NMT). Facilitating therapy looks different via teletherapy.
This is not a post designed for artistic eloquence, but rather one where I am speaking as a mother directly from my heart to the Arizona State Division of Developmental Disabilities, Governor Ducey, and all those responsible for funding disabilities services in this state. Whatever else we choose to leave behind from the emergency phase
“Mama!” I heard Hannah call out this fearful exclamation as I slipped down the last four stairs in our house, emotionally crusted over from I can’t even begin to tell you how many sleep deprived middle of the night escapades with Tony. My physical reflexes were often slightly impaired and set to spastic that early
To Justine Perhaps you cannot truly know what a gift trusting and sticking it out past the harder parts is to the heart of a mother of a child with the kind of needs Tony has- what it means to and for him. I know my understanding of love changed entirely the day our sweet
Miss E, Tony’s previous physical therapist, left the clinic where Tony was receiving PT around the same time as that organization was pushing forward with some business model changes that I felt would lead to clinic conditions that would be less productive for Tony personally. I of course support their rights to move in whatever
I’m starting a bit later than usual to plunk out my thoughts this week because I had to spend some time in one of my happy places to insulate my emotional reserves some for this topic. Which of course, should serve as a warning that I may be about to type some things that some
So, as I’m typing this, the new fridge I ordered yesterday (because the old one is not going to be gasping out enough cold air to keep food safe for much longer) is sitting in our living room. I’ve been in non-stop (and therefore mentally out of breath) mode since yesterday… and now have unexpected
I was somewhere between 18 months and two years of age (I suspect closer to the 18 months side because I am seventeen months older than my sister) the first time I remember being placed in a situation of overwhelming responsibility. My mother had gone somewhere or returned to work after having given birth, and
