Regarding Proposed Cuts To Services for the Developmentally Disabled in Arizona

An Open Letter to Governor Hobbs, the Arizona State Legislature, and each of you: In this house, my kiddo has now been without PT and OT for more than a month as the situation I wrote about in my last post remains an active and unresolved matter. So in what would have been an OT

Just Like That UMR Happened…

Bear with me, that title is going to make sense in a few paragraphs. On December 16th, 2024, I met with an orthopedic spine surgeon to discuss my MRI findings and a proposed surgery. He felt that waiting any longer than necessary to do the surgery increased my risk of permanent deficits, specifically he mentioned

Two Autistics Walked In…

This is a lower resolution screenshot taken from a brief summary video I was able to download from my MRI in October. What is shown here, according to the surgeon who is treating me, is one of my disks which has slipped behind a vertebrae. And what you are seeing is a picture of what

November Gratitude & Some Reading/Viewing

Miss Emily Somehow even when I know the way time can slip through the fingers and the mind, I still struggle to math that there have been enough days to add up to nearly 9 years now that we’ve known each other. From Tony’s second music therapist to one of my closest friends, you will

“But Wait, There’s More…”

If only it were going to come with the “low, low price of just $19.95.” OK, so you can totally tell I saw a few too many infomercials in the ’80’s. I wish I could say some of this came as a complete surprise, but it didn’t. My foot slipped carrying an air purifier down

It’s A Matter Of Perspective

Some days I love my make up, sometimes it just doesn’t go as planned (like today, the first pic). Sometimes though, the view we see looks distorted because we’re not seeing or believing the full picture. Photos, videos, and screenshots by Ariana. It’s all a matter of perspective, what lens or experiences a person is

Mental Healthcare *Is* Medical Healthcare

Perhaps it’s fruitless to disagree or discuss this with Google’s AI, but in undertaking to comment on this statement here I am doing so as an acknowledgement that the above is a view held by many, including those who can and do work in the “medical” side of healthcare. And I must also acknowledge that

Word Light, Gratitude Heavy

The biggest challenge for me as a mother, the one-to-one aide for our son Tony, and his hab therapist has been keeping me functional while neurological evaluations and diagnostics are happening. What has been happening with involuntary movements and muscle twitches has been impacting my sleep when the medication balance isn’t working, and when that

Looking For Positives While Lumbering Through The Sluggish Quagmire of the US Healthcare Diagnostic Process

I have been going to the same healthcare clinic for the past 18 years for all of my primary care needs. Because I had a situation go not so bueno with my ObGyn during my pregnancy and delivery with Hannah, I struggled for a while to want to go in and see any healthcare provider,

Autism Sure. And…What Else?

I have certainly written this before somewhere buried deep in these pages: pictures can tell so many lies. Perhaps unwittingly (even if they are unedited as this one is), but so it remains. But, we’re not getting into that just yet. Perhaps you may be wondering if I have a confirmed Autism diagnosis yet. And,

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