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Just The Waves Of Life
Every night since I developed POTS, I listen to some version of waves crashing against the shore. I find that these sounds sooth me the most, and I sleep so much better with them…but only if they crash with a certain amount of force. Not too much, not too little. My inner Goldilocks gets it.…
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March Gratitude & Some Self-Care For The Stressed Viewing/Stuff
Y’all, my schedule is so full I don’t usually even cook for myself these days. I make myself salads. Yogurt bowls. Oatmeal. Smoothies. Maybe some pasta (if it will cook in less than 10 minutes). So as much as I would like to detail all the ways I am grateful for the special education team…
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Life Always Giving Us New Therapy Goals
Things have remained pretty busy over here, so I am going to keep this post short and sweet. Yep, it was strep. He’s been on antibiotics for more than a week now. And the appointment to be tested with his primary care made it clear there’s yet another thing we need to help him learn…
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“He Has Benefited From Having You Here”
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in…
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February Gratitude & Some Reading
To My Children Words can be spoken or written as no more than hollowed vessels that propriety and circumstances may dictate be served up and spiced at the appropriate intervals. These customs surficially demonstrate to others that we love, we care, we rejoice, we are grateful. But to render them with every depth of feeling…
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The Schedule’s Packed, But It Creates More Than Stress
Most days are packed. Up at 4:45, giving the kids their meds, getting ready to walk around 5:30 with Tony, neti pot, yoga, rower, shower, makeup, drive into school, participate in everything that might be required there, drive home, be present for anything his ABA RBT or BCBA needs, do some chores when they don’t…
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Maybe This Ain’t Your Mama’s Stress
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I…
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The Gift Of The Christmas Germs
There’s no way a gift bag, fancy wrapping, ribbons, or a bow would hide that this year, I felt stretched thin enough that I simply slapped traditional veneer on the right spots heading up to the holiday. So what we were doing kinda looked outwardly like appropriate festivities, but the feeling didn’t quite reach into…
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Maybe She’s Going Through It…
The stairway up to the balcony level at Symphony Hall is pretty wide. If I had to estimate, I would say it is four feet at least between the wall and the first set of rails, and then another four feet or so of stair width on the other side of the middle rail. Hannah…
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Scheduling Like Tony Schedules And Then Some…
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is…