Tag - caregiver challenges 9 posts

March Gratitude & Some Reading/Viewing

March Gratitude If I’m having the most honest moment I can have right now, I’d say today is a day where my brain is struggling to marshal enough external focus to write, internally those neurons are dancing away listening to Karol G’s latest single on repeat. Even though my desire to focus is definitely on

Maybe I Still Can’t Always…

Maybe I can’t tell you all the reasons my schedule is bleeding losses of self-care. Maybe I still can’t always get into every medical appointment I need to for myself. I’ve actually made two annual physicals in a row…but I have two other specialists I’m past due for visiting and a mammogram that will happen…sometime?

A Bit About Matters Old & New

I have always been so very grateful to the therapists and individuals who have chosen to work with our son and our family. So many years ago when Andy and I were driving our rental car towards Disneyland on our honeymoon, as we talked about the family we hoped to start our current circumstances really

February Gratitude & Some Reading

To Eowyn The razor thin edges on so many words, the shattered shards of a strong divide, coated thickly with the dust of nearly a decade replaying only echoes of it all… a formidable array of obstacles that would have dissuaded many from trying to bridge such a potentially jagged and emotionally fraught gap. Thank

When The Stress Won’t Stop

I had just fled my parents’ bedroom when I heard the click, and then my mother scream– “He’s got a gun, run!” My mother’s fourth (and current) husband, had flown into a rage, flinging and destroying items (a boombox became the first casualty) because I wouldn’t say I loved him when he asked if I

Navigating The Stress Of Allergies, POTS, And All Things Health & Being Needed On The Therapy Team

For nearly a year now, I have been bobbing up and down on the waves of life, trying not to get swamped or washed overboard as I navigated managing my health and maintaining the active role I must play in all of Tony’s therapy programs that transpire outside of our house. These programs are essential

Being Real on the Sea of Life

I believe in keeping things as real as possible here, bearing in mind of course that I am committed to respecting the privacy levels requested for everyone who is in or interacts with our family. When I put pictures up showing some of my makeup, while my shots are not filtered or Photoshopped, I do

When *My* Body Says No…

I was somewhere between 18 months and two years of age (I suspect closer to the 18 months side because I am seventeen months older than my sister) the first time I remember being placed in a situation of overwhelming responsibility. My mother had gone somewhere or returned to work after having given birth, and

Sleep Band-aid

Simplicity and I have a very complicated relationship. Sometimes I can be comfortably entwined with something that is stripped down, and others I feel that all of the details of a particular situation are demanding an acknowledgment from me with equal force. Sometimes the way I write about our experiences is just a product of

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