Tag: developmental delays
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Just Like That UMR Happened…
Bear with me, that title is going to make sense in a few paragraphs. On December 16th, 2024, I met with an orthopedic spine surgeon to discuss my MRI findings and a proposed surgery. He felt that waiting any longer than necessary to do the surgery increased my risk of permanent deficits, specifically he mentioned…
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Still Busy & Checking In
This isn’t a content heavy post, just a quick check in. We may have been silent here, but we’ve been busy. I’ve started the evaluations mentioned in last post, we did summer school with Tony, and we’re still working on therapy goals. Currently, he’s mastered tolerance of headphones with sound, so we’ve started prep work…
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Quiet Moments Of Puzzle Joy
There is so much uncertainty in life. A great many people before me have said it, perhaps many more after me. The quiet successes and happy moments in the now have to be the joy we live for, because the rest is just a maybe, a hopefully…a maybe, hopefully some day. But today, this day,…
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Comments On The Updated CMS 1115 Waiver Proposal: An Open Letter to the Arizona AHCCCS Administration
On September 6th, I attended the virtual question and answer session held by the Arizona AHCCCS Administration to address additional changes they had made based on parent feedback to the CMS 1115 waiver proposal. As a parent, I personally want to express my appreciation and gratitude that our voices were heard, considered, and that modifications…
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“So, How’s He Doing?”
I get asked a lot lately, “so how is Tony doing?” Well, it’s been a very busy couple of months. We went right from the transition out of services with his former ABA providers (and he was really heartbroken about that) into the holidays where pretty much everybody who works with us wanted to take…
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Some Therapy Tie-ins
This week’s post is all about tying up a few therapy notes loose ends. I strive to be comprehensive enough in each post to adequately address an issue and be useful to those who may need to try similar strategies or techniques. However, some of this past month’s topics were already long enough on words…
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Yeah, I Was Bald Once…
But, it’s probably not what you think. Trying to explain the Fall of 2013 would be a book all by itself. I cannot begin to convey with a single post much less anything approaching brevity the sensory battlefield we were already entrenched on. Let’s just say, things were difficult by the time I was getting…
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“To Diagnose or Not To Diagnose”
Hamlet was confused, but you shouldn’t be. When we were first starting our family’s diagnostic journey for Tony, I had some people express to me that I should not be seeking any sort of diagnosis for him because those labels follow a person for life. And I have been asked by some their opinions about…
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OT Update & Backstory
As I mentioned in last week’s post, Tony doesn’t react to all losses in his life the same. Nearly a year and a half ago, we moved some of Tony’s therapy services to our side of town. At the time, we were able to find clinics that could provide both occupational therapy and speech therapy…
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Tony & School
Hey guys! Its me, Hannah. Back with another post! 🙂 Most of us kids\teens have started school by now. Some are exited to go to school. Others are deeply bored by it. Some just don’t like their peers. And others are kinda in the middle. They don’t necessarily like school or hate it. And then…