Tag: POTS
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When Mast Cells Get Grumpy & Other Updates
Yeah, that’s my stomach, and my fit bit. Photos by Ari and Ms. S That’s a shot of my skin with 2 Allegra, 100 mg of hydroxyzine, and prednisone in my system…and the hives still weren’t controlled or gone. Didn’t start getting better until 4 days into the prednisone. Most of my body looked like…
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Word Light, Gratitude Heavy
The biggest challenge for me as a mother, the one-to-one aide for our son Tony, and his hab therapist has been keeping me functional while neurological evaluations and diagnostics are happening. What has been happening with involuntary movements and muscle twitches has been impacting my sleep when the medication balance isn’t working, and when that…
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Looking For Positives While Lumbering Through The Sluggish Quagmire of the US Healthcare Diagnostic Process
I have been going to the same healthcare clinic for the past 18 years for all of my primary care needs. Because I had a situation go not so bueno with my ObGyn during my pregnancy and delivery with Hannah, I struggled for a while to want to go in and see any healthcare provider,…
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On Allergies, Mast Cell Activation Syndrome, & The Costs Of Healthcare
Y’all deserve high quality writing. You do. But, this is what you’re getting so that I can find some personal time today…and it’s going to be relatively to the point and skip anything more elevated or artsy. Life with a lot of allergies and Mast Cell Activation Syndrome can be complicated to navigate under the…
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Thoughts About When Symptoms Are From A Medical Condition & Not Disordered Anxiety: A Note of Gratitude to Emma from Therapy In A Nutshell
I started watching Therapy In A Nutshell’s Anxiety series for the same reason I decided now was an awesome time to retry CBD and see if I had lost my sensitivity: Bank of America’s Fraud response. I was starting to have panic attacks in the middle of the night, struggling to sleep, and it was…
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Gratitude & A Conversation About CBD As An Option For Mast Cell Activation Syndrome
Second screenshot is citation source, photos and screenshots by Ariana. Allergies can come and go. For an item to which a person can avoid exposure, sometimes in as little as a year a person may no longer react to the item. My life has taught me this many times over. My earliest memories are filled…
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Just The Waves Of Life
Every night since I developed POTS, I listen to some version of waves crashing against the shore. I find that these sounds sooth me the most, and I sleep so much better with them…but only if they crash with a certain amount of force. Not too much, not too little. My inner Goldilocks gets it.…
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March Gratitude & Some Reading/Viewing
March Gratitude If I’m having the most honest moment I can have right now, I’d say today is a day where my brain is struggling to marshal enough external focus to write, internally those neurons are dancing away listening to Karol G’s latest single on repeat. Even though my desire to focus is definitely on…
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I love You Always
The on-call OBGYN ran up to my hospital room door, throwing it open, with his lab coat flapping around him and swirling to a halt as he immediately stilled his forward motion and tried to sound more casual as he said, “We need to take you to the OR right now, the baby has gone…
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Where I’m at on my post a-POTS-calyptic Journey
Let’s take a look again at one of the pictures I posted last week. How many of you noticed that the hand on my hip was turning red in the fingers and knuckles? Just a road sign to anyone who knows to look for it that I’m on a post a-POTS-calyptic road. When I am…