Tag: Sotos Sydrome
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Just The Waves Of Life
Every night since I developed POTS, I listen to some version of waves crashing against the shore. I find that these sounds sooth me the most, and I sleep so much better with them…but only if they crash with a certain amount of force. Not too much, not too little. My inner Goldilocks gets it.…
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Scheduling Like Tony Schedules And Then Some…
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is…
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What I Think Every Neurotypical Therapist, Teacher, Or Paraprofessional Should Know
As you are looking at this picture, I don’t want you to ask yourself should our son have been up there on collapsed bleachers. I don’t want you to think about whether or not he can get down safely on his own. Those are, of course, valid questions, but there’s really only one thing I…
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More Than A Backdrop Or A Therapy Prop
There are times when I have encountered the sentiment in others that I don’t have much of a right to express any sort of discomforts over the personal challenges I have faced or the sacrifices I have made to provide the intensive level of support required for our son. He is the one with the…
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Can We See All The Sides?
I thought of all the ways I could write this post, and I decided just to wrap it around a screenshot from an e-mail I sent some friends on December 28, 2016. I am going to re-type it just following this in case the images don’t show up well for those who get my posts…
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Some Halloween Gratitude
My friends, family, and loved ones: I have so many things I need to do still tonight and for the remainder of the week. My eloquence is toast, my desire to create artistically pleasing phrases to describe our circumstances is worn to silence by hand-wringing over the to-do list. So briefly: I am grateful for…
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Hidden Costs & Some Dental Prep Strategies
Sometimes on this blog I have used my October posts to delve into some of the darker aspects of what a family of a loved one with significant disability-related challenges can experience. And, I thought about it this year too. I was thinking something about playing on the words of an older LeAnn Rimes song,…
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It Takes A Team
Even though I am working with Tony on his tolerance of the school environment and the behavioral skills requisite directly during the two hours he’s currently at the school itself, I am also needing to do other things outside of school to promote the best outcomes. As his habilitative therapist, we are practicing skills such…
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Sight Word Show & Tell
Some day, my son is definitely going to be able to read. He can do a little bit of spelling now using apps, some sight word memory games (where the sight words are turned over and he creates matches from memory). Lately I have been practicing his scanning with him by giving him fields of…
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To Dream To Find More Of Me
There is so much rushing, so much. My thoughts have always whirled in a rapid-fire dance across my mental stage, but life has become busier even than that. So many appointments, so many therapy sessions, so much school transition work, so much of everything. Sometimes I feel like I am hurled forward so fast I…