Tag: Trisomy 5Q
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What Some Kiddos Need To Stay Afloat Through School Changes
I wonder how many parents take for granted that they can just drop their kids off at school or send them out the door to a bus stop and know that their kiddo is going to swim along through the year just fine without anything outside the expected start of the school year traditions being…
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“Two Things Are True”
Earlier this afternoon, after completing a therapy session with Tony, I dropped Hannah and her boyfriend off at Guitar Center, and then drove myself across the street to treasure a rare moment. A moment where I got to enter a store with me in mind and all by myself, no pressure to focus on therapy…
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Quiet Moments Of Puzzle Joy
There is so much uncertainty in life. A great many people before me have said it, perhaps many more after me. The quiet successes and happy moments in the now have to be the joy we live for, because the rest is just a maybe, a hopefully…a maybe, hopefully some day. But today, this day,…
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Just The Waves Of Life
Every night since I developed POTS, I listen to some version of waves crashing against the shore. I find that these sounds sooth me the most, and I sleep so much better with them…but only if they crash with a certain amount of force. Not too much, not too little. My inner Goldilocks gets it.…
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Life Always Giving Us New Therapy Goals
Things have remained pretty busy over here, so I am going to keep this post short and sweet. Yep, it was strep. He’s been on antibiotics for more than a week now. And the appointment to be tested with his primary care made it clear there’s yet another thing we need to help him learn…
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“He Has Benefited From Having You Here”
Yesterday afternoon I had the pleasure of meeting briefly with the current principal for Tony’s school to discuss how things were going for him and whether or not I’d be returning to assist him at the school next year. She remarked about how well he was doing, we talked about the growth he’s had in…
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Maybe This Ain’t Your Mama’s Stress
Originally, I had planned this particular post to come after “Maybe She’s Going Through It.” Then everyone was sick, and I just wasn’t feeling the writing vibe. And then I got carried away in watching my son doing so well with some of his goals the first week we were back at school, and I…
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The Gift Of The Christmas Germs
There’s no way a gift bag, fancy wrapping, ribbons, or a bow would hide that this year, I felt stretched thin enough that I simply slapped traditional veneer on the right spots heading up to the holiday. So what we were doing kinda looked outwardly like appropriate festivities, but the feeling didn’t quite reach into…
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Scheduling Like Tony Schedules And Then Some…
To help our son with his combination of sensory differences, functional deficits, and disability-related needs acclimate to an environment such as a public school is more complicated than just showing up and gradually increasing his time when he shows he’s ready for that. There are so many moving pieces to think about. How complicated is…
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What I Think Every Neurotypical Therapist, Teacher, Or Paraprofessional Should Know
As you are looking at this picture, I don’t want you to ask yourself should our son have been up there on collapsed bleachers. I don’t want you to think about whether or not he can get down safely on his own. Those are, of course, valid questions, but there’s really only one thing I…