December Gratitude & Some Reading

To Miss Rachel, for Patience and Kindness to Our Son Rachel’s period working with our family as Tony’s occupational therapist was brief. However, she recognized something that is easy to miss when a kiddo looks a lot like everyone else on the outside but functions very differently on the inside- that our little man was

OT Update & Backstory

As I mentioned in last week’s post, Tony doesn’t react to all losses in his life the same. Nearly a year and a half ago, we moved some of Tony’s therapy services to our side of town. At the time, we were able to find clinics that could provide both occupational therapy and speech therapy

Medication & Regulation Roller Coaster

I feel like this past month should have come with warning labels. Warning: Medications often have disruptive side effects. Warning: Sometimes this roller coaster flips of the tracks when life changes too quickly. Warning: Once you step on board, not everything that happens on this ride is in your control. So, I’m going to give

Tony’s Halloween

Hey guys! Happy (late) Halloween!!! I hope you enjoyed your holiday and weren’t driven insane by trick-or-treaters pestering you for candy. Although there are a few different ways to celebrate Halloween, many people celebrate by: Going trick-or-treating or taking their kids trick-or-treating Going to Halloween parties Watching a Halloween movie Dressing up Handing out candy

November Gratitude & Reading

To Hannah, My Cherished Daughter and Blogging Partner I don’t even know how to condense the gratitude of so many years into one post. I was incredulous when the first pregnancy test came back positive, and if memory serves I ended up taking three before I stopped trying to snuff out the tentative hope of

Becoming the Socially Undead

This tale involves things that can haunt a person without being supernatural. Of course, I would never want to scare another parent whose feet are freshly placed upon the path of parenting a kiddo with significant disabilities. But I cannot change that I have been witness to an emotional crime scene, a missing person’s report,

“This is Halloween…”

For the past few weeks, decorations have begun pushing up through the soil and fluttering around the tree branches of one home after another in our neighborhood. When I was younger, I can’t remember anyone beginning to decorate for Halloween so early. And I know that for some of you, the upcoming week may already

Every Day is “Groundhog Day”

They say life isn’t like the movies, as if every day’s agenda will be definitively pulled from a drop menu of easily parsed platitudes. Some days can not be bound by such lists and assumptions. Entire years even can be unrestrainedly defiant of them. In this house we have been given a different script to

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