Tag: supporting special needs siblings
-
I love You Always
The on-call OBGYN ran up to my hospital room door, throwing it open, with his lab coat flapping around him and swirling to a halt as he immediately stilled his forward motion and tried to sound more casual as he said, “We need to take you to the OR right now, the baby has gone…
-
A Quick Spotlight For Hannah’s Drawings
I am a woman richly blessed with two beautiful children, though much of my writing here focuses on the needs and circumstances that have arisen from only one of them. Hannah’s participation here has always been at her discretion- she can contribute what she would like or not, as she feels inclined. Regardless of what…
-
Cactus Blooms
This is one of those weeks where many unexpected things have dropped roots and sprouted up all across my schedule, and the rest of my unspoken for time has been dedicated to infection control aimed at providing the safest environment possible for those who work and live in our home. So this week, I am…
-
About that Calendar…
You may have some questions about this picture. Now, there is (of course) a story behind it and we certainly will get all of it displayed up on the wall- eventually. For right now, I will start off by stating the obvious (that it was not taken near Halloween) and that yes, I really am…
-
Can’t Do it All, Y’all
When I described our first meeting with J.N. a couple of weeks ago, I kept the cover firmly closed on the subject of my own self-care. This is I think an incredibly important subject when it comes to families of individuals with extensive needs, but experiences can vary widely and there are the rights and…
-
Bandit
Bandit. status: curtain climber/house destroyer/wounder of humans/adorable cat/friendly cat We adopted Bandit December 9th, 2017. That was just about 2 months after my other cats (Dickens and Whispie) died. I was very upset after their deaths, and thinking about it still causes me pain. How did we come to adopt bandit? It started on December…
-
Hannah’s Time Off
When Hannah asked me if she could write regular posts for our family’s blog, I supported her but have given her the option of taking time off if she needs to. Typically she writes her posts over the weekend before they run because of the time demands for schooling during the week. This past Saturday…
-
Summer With a Disabled Child
IT’S SUMMER! Time to go to the pool, have a BBQ, a picnic, go on some sort of vacation, get a front row seat for 4th of July fireworks… Or IS it? You see, a disabled kid might struggle with these things. LOUD NOISE 🙁 Imagine this: Your 10 year old child is begging to…
-
A Hero & A Villain
Catzilla. His Royal Fluffiness. Dickens the Destroyer. Best Friend. Cat Moose. Hero. Villain. Like many of us, Dickens was complex. To the members of our family he was different things at different times (as we all are to the people around us), but at the end of the day he was loved from the first…